Calendar of Events
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3 events,
At the Heart of Caring: A Caregiver’s Journal
Written by Katherine Long and Lindsay Feinberg in memory of Lindsay’s father, Andrew Feinberg, At the Heart of Caring: A Caregiver’s Journal prompts the reader with daily activities to establish self-care habits. Caregivers and Care partners can build their toolset to encourage reflection, honor their experiences, and express themselves in this handy journal. Starting April 17,…
Caring for Carol by Caring for Me
In Caring for Carol by Caring for Me, Anthony P. Mauro Sr. recounts the emotional journey of caring for his wife, Carol, through her battle with FTD. The memoir highlights the couple’s struggles with misdiagnosis, the profound losses brought on by this unique type of dementia, and Anthony’s personal growth in embracing life’s inevitable sorrows. This…
Simply Relaxing Coloring Pages
Janice Mandes created a one-of-a-kind coloring book called Simply Relaxing Coloring Pages in honor of her mom. Janice made it to inspire creativity and provide a calming activity for individuals and families impacted by frontotemporal degeneration (FTD). This project was inspired by her mom, who is living with FTD. She wanted to create coloring pages…
4 events,
Dueling Pianos for AFTD
Dueling Pianos for AFTD
Join us at Dueling Pianos for AFTD, a fundraising and awareness event hosted by AFTD volunteers Guy Margolin and Lauren Pelaia. This event is sponsored by the Flying Ivories and the LVW Pickleball Club. All tickets MUST be purchased in advance. Seating is limited so buy early to reserve your spot! For more specifics (including…
4 events,
Unidos en el camino: reunión de personas confrontando la demencia frontotemporal
Unidos en el camino: reunión de personas confrontando la demencia frontotemporal
Únase y aprenda de otras personas que entienden y han vivido el camino difícil de la DFT (degeneración frontotemporal) en este evento virtual. Este evento es específicamente para personas hispanohablantes y las dificultades que la comunidad latina pueda encontrar en particular aquí en este país. Les daremos la bienvenida además de obtener apoyo y recursos…
4 events,
Surge Sauna & Cold Plunge Grand Opening
Surge Sauna & Cold Plunge located in Downingtown, PA is having their grand opening on April 11-13, 2025! During the weekend, guests can enjoy access to their cold plunge tubs, dry and infrared saunas and red light therapy as well as yoga classes, massage sessions and a sound bath with Soul Bloom Sanctuary. Every purchase…
5 events,
20th Annual Holy Half Marathon
20th Annual Holy Half Marathon
Colleen Quinn and her family are participating in the 2025 Holy Half Marathon in memory of Colleen’s father Ed McAndrew. This half marathon’s course takes place along the University of Notre Dame’s campus and includes several of the University’s famous landmarks.
3 events,
AFTD Webinar: How to Find a Genetic Counselor
AFTD Webinar: How to Find a Genetic Counselor
FTD has a stronger genetic risk than other dementias. While not all FTD is inherited, understanding whether the FTD in your family is genetic is crucial: it can confirm the diagnosis, inform care choices, and help you anticipate future care needs, plan financially, and allow relatives to make informed decisions around family and future planning.…
3 events,
Regional, Virtual Meet & Greet for Idaho, Oregon, and Washington for Parents Caring for a Spouse With FTD
Regional, Virtual Meet & Greet for Idaho, Oregon, and Washington for Parents Caring for a Spouse With FTD
Join and learn from others who understand the FTD journey at this virtual, regional AFTD Meet & Greet event for parents whose spouses are diagnosed with FTD in Idaho, Oregon, and Washington, hosted by AFTD volunteer Julie Motschenbacher, on April 28, 2025. RSVP by emailing Julie at m13family at gmail.com. We encourage you to download this flyer and…
3 events,
FTD Information Session at the City of Plymouth Community Center, in Plymouth, Minnesota
FTD Information Session at the City of Plymouth Community Center, in Plymouth, Minnesota
Learn more about FTD disorders at this in-person informational session hosted by AFTD Ambassador Nanci Anderson. Whether you are on the FTD journey or just curious about it, this session will answer questions and connect you to resources for FTD. You can download a pdf flyer to help spread awareness of this event.
3 events,
AFTD 2025 Education Conference – Denver, CO and via Zoom
The AFTD 2025 Education Conference is coming to the Omni Interlocken Hotel on May 1-2, 2025! People diagnosed, care partners, families, friends, healthcare professionals, and researchers are invited to connect with people who understand the journey, learn about available resources and supports, and engage with experts to gain insight on the latest in FTD research and approaches to care. On Thursday, May 1,…
3 events,
Maine Coast Marathon
Emily Chadwick and her husband are running in the Maine Coast Marathon in honor of her father James who has been diagnosed with FTD. “Marathon training has been such a great outlet for me as I process my dad’s illness and I am glad to have found AFTD so I can put the miles to…
3 events,
2025 TD Five Boro Bike Tour
The AFTD-Team is an Official Charity Partner of the 2025 TD Five Boro Bike Tour, taking place on May 4! We've been allotted 10 guaranteed entries to the event. To be awarded an entry, each person must fundraise $500 for AFTD's mission. If you're interested in participating on the AFTD-Team for this event, please contact…
Caring for Carol by Caring for Me
Simply Relaxing Coloring Pages
Dueling Pianos for AFTD
Caring for Carol by Caring for Me
Simply Relaxing Coloring Pages
20th Annual Holy Half Marathon
Caring for Carol by Caring for Me
Simply Relaxing Coloring Pages
Maine Coast Marathon
Caring for Carol by Caring for Me
Simply Relaxing Coloring Pages
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