Calendar of Events
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4 events,
At the Heart of Caring: A Caregiver’s Journal
Written by Katherine Long and Lindsay Feinberg in memory of Lindsay’s father, Andrew Feinberg, At the Heart of Caring: A Caregiver’s Journal prompts the reader with daily activities to establish self-care habits. Caregivers and Care partners can build their toolset to encourage reflection, honor their experiences, and express themselves in this handy journal. Starting April 17,…
Caring for Carol by Caring for Me
In Caring for Carol by Caring for Me, Anthony P. Mauro Sr. recounts the emotional journey of caring for his wife, Carol, through her battle with FTD. The memoir highlights the couple’s struggles with misdiagnosis, the profound losses brought on by this unique type of dementia, and Anthony’s personal growth in embracing life’s inevitable sorrows. This…
“Smple Mnds” Fundraiser
HL McIntyre from the UK is holding a fundraiser for her book, “Smple Mnds” where 40% of proceeds from the book sales will be donated to AFTD’s mission for the next six months in memory of her husband, who died in 2018, shortly after his FTD diagnosis. In this book, she shares her family’s FTD…
Simply Relaxing Coloring Pages
Janice Mandes created a one-of-a-kind coloring book called Simply Relaxing Coloring Pages in honor of her mom. Janice made it to inspire creativity and provide a calming activity for individuals and families impacted by frontotemporal degeneration (FTD). This project was inspired by her mom, who is living with FTD. She wanted to create coloring pages…
5 events,
Penn FTD Center Annual Familial Conference: Uncovering the Genetics of FTD/ALS
Penn FTD Center Annual Familial Conference: Uncovering the Genetics of FTD/ALS
AFTD is a bronze-level sponsor of the 2025 Penn FTD Center Annual Familial Conference, which will focus on the genetics of FTD/ALS. It will address topics for people living with, or at risk of, a familial and/or genetic form of FTD/ALS. Attendees will have the chance to hear from genetic counselors, neurologists, and social workers…
5 events,
AFTD Healthcare Professional Webinar: At the Intersection of FTD and the Law
AFTD Healthcare Professional Webinar: At the Intersection of FTD and the Law
FTD can present with executive dysfunction, impulsivity, loss of empathy, apathy and disinhibition. At times, these symptoms can lead to interactions with police, whether responding to an incident at home or in the community resulting in an arrest. This webinar will highlight what we know about the incidence of these interactions, discuss what FTD…
5 events,
Frontotemporal Lobar Degeneration: Moving Forward
Frontotemporal Lobar Degeneration: Moving Forward
Frontotemporal dementias are less well known than Alzheimer's disease but account for over half of the cases of dementia in people younger than 65 years. The last few years have witnessed rapid developments in the understanding of this group of diseases, particularly in terms of their genetic underpinnings and imaging characteristics. The 14th Annual Nantz…
4 events,
3rd Annual Ball to End Dementia Basketball Tournament
3rd Annual Ball to End Dementia Basketball Tournament
Amar Sharma is hosting the third Ball to End Dementia Tournament at his high school. This tournament will have it all: basketball, prizes, food, raffles, half-time games, and more! Students will form teams to compete in a basketball tournament. The champions will then play a team of faculty members for a grand prize. The proceeds…
4 events,
Northern Fort Myers, FL In-Person Meet & Greet
Northern Fort Myers, FL In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Julie Moore. Email Julie at juliemoore2016@gmail.com to RSVP for this event. Download this flyer to learn more.
4 events,
2025 Los Angeles Marathon
Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Los Angeles area and raise funds to help people affected by FTD. The AFTD-Team will participate in the Los Angeles Marathon on March 15-16 as an Official Charity Team. We hope you'll join us for a…
5 events,
Diehard Taxi Replica Car Show
Alan Persaud created a life-size replica of the taxi from Die Hard as a homage to Bruce Willis and the movie Die Hard with a Vengeance. He will be showing off his taxi at car shows and events in the UK and will also be sharing information about FTD and AFTD to help spread awareness.
AFTD Webinar: AFTD and You — Partners in Drug Development
AFTD Webinar: AFTD and You — Partners in Drug Development
How does a great scientific idea become an effective treatment? It’s a long and complicated process! Drug development involves many key players, including researchers, companies, regulators, funders, patient advocacy organizations like AFTD and, importantly, community members with lived experience of FTD. The field of FTD has made exciting progress in the past decade, with treatments…
4 events,
Roseville, CA In-Person Meet & Greet
Roseville, CA In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by AFTD volunteer and caregiver Ed Fargusson and AFTD Ambassador Terry Walter. RSVP for this event by contacting Terry by email (twalter@theaftd.org) or phone (916-761-7180). We encourage you to download this flyer and share it with…
4 events,
San Francisco In-Person Meet & Greet
San Francisco In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Jenna Goldman. To RSVP or ask a question, contact Jenna at jennagoldman17@gmail.com. We encourage you to download this flyer and share it with anyone who could benefit from this unique opportunity!
4 events,
Dueling Pianos for AFTD
Dueling Pianos for AFTD
Join us at Dueling Pianos for AFTD, a fundraising and awareness event hosted by AFTD volunteers Guy Margolin and Lauren Pelaia. This event is sponsored by the Flying Ivories and the LVW Pickleball Club. All tickets MUST be purchased in advance. Seating is limited so buy early to reserve your spot! For more specifics (including…
Caring for Carol by Caring for Me
Simply Relaxing Coloring Pages
2025 Los Angeles Marathon
Caring for Carol by Caring for Me
Simply Relaxing Coloring Pages
2025 Los Angeles Marathon
Caring for Carol by Caring for Me
Simply Relaxing Coloring Pages
Roseville, CA In-Person Meet & Greet
Caring for Carol by Caring for Me
Simply Relaxing Coloring Pages
San Francisco In-Person Meet & Greet
Caring for Carol by Caring for Me
Simply Relaxing Coloring Pages
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