Calendar of Events
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4 events,
At the Heart of Caring: A Caregiver’s Journal
Written by Katherine Long and Lindsay Feinberg in memory of Lindsay’s father, Andrew Feinberg, At the Heart of Caring: A Caregiver’s Journal prompts the reader with daily activities to establish self-care habits. Caregivers and Care partners can build their toolset to encourage reflection, honor their experiences, and express themselves in this handy journal. Starting April 17,…
Caring for Carol by Caring for Me
In Caring for Carol by Caring for Me, Anthony P. Mauro Sr. recounts the emotional journey of caring for his wife, Carol, through her battle with FTD. The memoir highlights the couple’s struggles with misdiagnosis, the profound losses brought on by this unique type of dementia, and Anthony’s personal growth in embracing life’s inevitable sorrows. This…
“Smple Mnds” Fundraiser
HL McIntyre from the UK is holding a fundraiser for her book, “Smple Mnds” where 40% of proceeds from the book sales will be donated to AFTD’s mission for the next six months in memory of her husband, who died in 2018, shortly after his FTD diagnosis. In this book, she shares her family’s FTD…
Simply Relaxing Coloring Pages
Janice Mandes created a one-of-a-kind coloring book called Simply Relaxing Coloring Pages in honor of her mom. Janice made it to inspire creativity and provide a calming activity for individuals and families impacted by frontotemporal degeneration (FTD). This project was inspired by her mom, who is living with FTD. She wanted to create coloring pages…
5 events,
AFTD Advocacy Webinar: Paving The Path Forward — Advancing AFTD’s Public Policy Priorities
AFTD Advocacy Webinar: Paving The Path Forward — Advancing AFTD’s Public Policy Priorities
Families living with FTD have significant unmet needs: access to quality dementia care, policies that are friendlier to unpaid caregivers, and a deeper public investment into disease-modifying treatments. In this webinar, the AFTD advocacy team and experts at the Washington, DC lobbying firm Innovation Policy Solutions will explain how you can advance these and other…
5 events,
FTD: The Other Dementia — Information Session in Plymouth, MN
FTD: The Other Dementia — Information Session in Plymouth, MN
AFTD Ambassador Nanci Anderson is hosting an FTD information session at the Plymouth Community Center in Plymouth, Minn. She will provide an overview of FTD and discuss resources available in the Twin Cities and from AFTD. This session is being sponsored by the city of Plymouth. RSVP by emailing Nanci at nanderson@theaftd.org.
5 events,
Online Event – Genetics of FTD and Genetic Research
Online Event – Genetics of FTD and Genetic Research
Join AFTD for the Alzheimer's San Diego online panel discussion, in which Kim Jenny, MS, LCGC, AFTD's Manager of Genetic Initiatives, and Dr. Alison Goate, Chair of the Department of Genetics and Genomic Sciences at the Icahn School of Medicine at Mount Sinai, will discuss the links between genetics and frontotemporal degeneration and other young…
5 events,
Panera Bread Restaurant Giveback Fundraiser
Panera Bread Restaurant Giveback Fundraiser
Sandra Gonzalez-Morett and Alma Valencia are hosting a Restaurant Giveback Fundraiser at Panera Bread located at 300 N Brand Blvd, Glendale, CA 91203 on Friday February 7, 2025. This fundraiser will be taking place 4:00pm-8:00pm at this location only. 20% of the proceeds that night will be donated to AFTD’s mission so come out and…
5 events,
Seattle, Wash. Virtual Meet & Greet
Seattle, Wash. Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in Seattle, Wash., and its surrounding communities on Sunday, February 9, starting at 2:00 p.m. PT. Email event host Pooja Thorali at thoralip@uw.edu to RSVP and receive the Zoom link. You can also download this…
5 events,
Ohio Hybrid Caregiver Lunch and Learn: Frontotemporal Dementia
Ohio Hybrid Caregiver Lunch and Learn: Frontotemporal Dementia
Bring a lunch and join AFTD Ambassador Judy Bearer for this lunch-and-learn event about frontotemporal degeneration (FTD), the most common cause of dementia in adults under 60 (though it can strike adults at any age). We will review possible causes and symptoms, find local resources, and learn how we can best support those affected by…
5 events,
2025 Austin Marathon
Join select AFTD staff and members of the local community at the 2025 Austin Marathon as we bring greater FTD awareness to the surrounding Austin area and raise funds to help people affected by FTD. The AFTD-Team will participate in the Austin Marathon on February 16, as an Official Charity Team. We hope you’ll join…
5 events,
Sparks, Nev. In-Person Meet & Greet
Sparks, Nev. In-Person Meet & Greet
AFTD Ambassador Scott Oxarart invites anyone impacted by FTD to join others on the FTD journey for a two-mile walk beginning at Nevada Veterans Memorial Plaza in Sparks starting at 10:00 a.m. If you are unable to walk, reach out to Scott at soxarart@theaftd.org to find a better way to connect. Download this flyer to…
5 events,
Penn FTD Center Annual Familial Conference: Uncovering the Genetics of FTD/ALS
Penn FTD Center Annual Familial Conference: Uncovering the Genetics of FTD/ALS
AFTD is a bronze-level sponsor of the 2025 Penn FTD Center Annual Familial Conference, which will focus on the genetics of FTD/ALS. It will address topics for people living with, or at risk of, a familial and/or genetic form of FTD/ALS. Attendees will have the chance to hear from genetic counselors, neurologists, and social workers…
5 events,
2/26 CME Webinar: At the Intersection of FTD and the Law
2/26 CME Webinar: At the Intersection of FTD and the Law
FTD can present with executive dysfunction, impulsivity, loss of empathy, apathy and disinhibition. At times, these symptoms can lead to interactions with police, whether responding to an incident at home or in the community resulting in an arrest. This webinar will highlight what we know about the incidence of these interactions, discuss what FTD symptoms…
5 events,
Frontotemporal Lobar Degeneration: Moving Forward
Frontotemporal Lobar Degeneration: Moving Forward
Frontotemporal dementias are less well known than Alzheimer's disease but account for over half of the cases of dementia in people younger than 65 years. The last few years have witnessed rapid developments in the understanding of this group of diseases, particularly in terms of their genetic underpinnings and imaging characteristics. The 14th Annual Nantz…
Caring for Carol by Caring for Me
Simply Relaxing Coloring Pages
Seattle, Wash. Virtual Meet & Greet
Caring for Carol by Caring for Me
Simply Relaxing Coloring Pages
2025 Austin Marathon
Caring for Carol by Caring for Me
Simply Relaxing Coloring Pages
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