New York City Virtual Meet & Greet
Zoom (RSVP for link)Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19 at 6:00 p.m. To RSVP and obtain the Zoom link, send an email to event host Sam Given at samgivensing@gmail.com. You can also download this flyer to…
FTD & ALS: A Collaborative Approach to Diagnosis and Care
We know of several genes that can cause hereditary FTD, ALS, and ALS with FTD, with C9orf72 the most common. Yet genetics is not the complete story, as these conditions can appear without a known genetic cause. In this AFTD Healthcare Professional Webinar, neurologists from Massachusetts General Hospital who specialize in FTD and ALS will…
National Meet & Greet for LGBTQIA+ Adults Confronting FTD
ZoomLGBTQIA+ people living with or caring for a loved one with FTD face compounding stressors unique to their population. AFTD is committed to providing a safe, affirming environment to access resources and psychosocial support for care partners while navigating the FTD journey, with people who understand their lived experiences. AFTD will host a national, virtual…
VA Caregiver Support Annual Summit
East Orange VA Medical Center 385 Tremont Avenue, East Orange, NJ, United StatesAFTD staff will have an information table during the annual summit of the VA New Jersey Health Care System in East Orange. The event, which this year is titled "Beyond the Caregiving Role: Seeing the 'Whole' Caregiver," is held in the third floor auditorium in the East Orange VA Medical Center.
Second Annual Kim Rose Cure for Dementia Wings & Rings Golf Outing
Glenview Golf CourseChristin Rose and her family are hosting the 2nd Annual Kim Rose Cure for Dementia Wings & Rings Golf Outing on June 28, 2024, at Glenview Golf Course in Cincinnati, OH. The event is in honor of Christin’s mother-in-law, Kim, who is living with FTD, and to celebrate her 63rd birthday. The fun starts at…
Frontotemporal Degeneration (FTD): Symptoms, Diagnosis, Responses, Outcomes, Family Stories
Evanston Public Library Orrington Avenue, Evanston, IL, United StatesAFTD Volunteers Bruce Lipman and Erica Heffernan will be hosting an informational session at the Evanston Public Library on July 2 from 6-7:30 PM, CDT to offer powerful, personal perspectives on FTD. During this session, Bruce will share his insights as a care partner and support group volunteer, while Erica will discuss her experiences as…
Pittsburgh, Pa. Virtual Meet & Greet
Zoom (RSVP for link)Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in the Pittsburgh, Pa. area on Monday, July 15. RSVP by emailing event host Janet Freburger at janet.freburger@gmail.com. You can also download this flyer to learn more.
FTD: The Other Dementia
Plymouth Community Center 14800 34th Avenue N., Plymouth, MN, United StatesAFTD Ambassador Nanci Anderson will provide an overview of FTD, along with available resources available in the Twin Cities and from AFTD. Download this flyer to learn more.
19th Annual George F. Sidoris Memorial Golf Outing
The 19th Annual George F. Sidoris Memorial Golf Outing will be held on July 20, 2024 at the Lost Nation Golf Course in Willoughby, Ohio. The event will feature a shotgun start, four person scramble format, closest to the pin and most accurate drive contests, door prizes, a raffle and steak dinner. All proceeds to…
Advocate for Awareness: Working with Lawmakers to Highlight FTD
FTD advocates can help bring awareness to their communities by working with lawmakers to issue proclamations and resolutions designating a statewide FTD awareness week. But what are proclamations and resolutions, and how can advocates push for them? In this Advocacy Webinar, AFTD staff will explain the difference and share the steps that you can take…
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