FTD Clinical Research Learning Institute
Hosted by the Penn Frontotemporal Degeneration Center in partnership with AFTD, the FTD Clinical Research Learning Institute is a one-day virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research by educating them on the clinical research process. Topics will include FTD…
Richmond, Va. Meet & Greet
Richmond Public Library, East End Branch North 25th Street, Richmond, Virginia, United StatesJoin and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at East End Branch of the Richmond Public Library. RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about this event, as well as an in-person Meet & Greet happening…
National Meet & Greet for College-Aged Adults Confronting FTD
ZoomAFTD will host a national, virtual Meet & Greet on June 15 for those aged 17-26 who live with and help care for a person living with FTD. We will discuss some of the particular struggles for those of us in this age group and also introduce a new National Support Group for Young Adult…
Newport News, Va. Meet & Greet
Grissom Library Deshazor Drive, Newport News, VA, United StatesJoin and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News. RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening in Richmond earlier the same day.
New York City Virtual Meet & Greet
Zoom (RSVP for link)Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19 at 6:00 p.m. To RSVP and obtain the Zoom link, send an email to event host Sam Given at samgivensing@gmail.com. You can also download this flyer to…
FTD & ALS: A Collaborative Approach to Diagnosis and Care
We know of several genes that can cause hereditary FTD, ALS, and ALS with FTD, with C9orf72 the most common. Yet genetics is not the complete story, as these conditions can appear without a known genetic cause. In this AFTD Healthcare Professional Webinar, neurologists from Massachusetts General Hospital who specialize in FTD and ALS will…
National Meet & Greet for LGBTQIA+ Adults Confronting FTD
ZoomLGBTQIA+ people living with or caring for a loved one with FTD face compounding stressors unique to their population. AFTD is committed to providing a safe, affirming environment to access resources and psychosocial support for care partners while navigating the FTD journey, with people who understand their lived experiences. AFTD will host a national, virtual…
VA Caregiver Support Annual Summit
East Orange VA Medical Center 385 Tremont Avenue, East Orange, NJ, United StatesAFTD staff will have an information table during the annual summit of the VA New Jersey Health Care System in East Orange. The event, which this year is titled "Beyond the Caregiving Role: Seeing the 'Whole' Caregiver," is held in the third floor auditorium in the East Orange VA Medical Center.
Second Annual Kim Rose Cure for Dementia Wings & Rings Golf Outing
Glenview Golf CourseChristin Rose and her family are hosting the 2nd Annual Kim Rose Cure for Dementia Wings & Rings Golf Outing on June 28, 2024, at Glenview Golf Course in Cincinnati, OH. The event is in honor of Christin’s mother-in-law, Kim, who is living with FTD, and to celebrate her 63rd birthday. The fun starts at…
Frontotemporal Degeneration (FTD): Symptoms, Diagnosis, Responses, Outcomes, Family Stories
Evanston Public Library Orrington Avenue, Evanston, IL, United StatesAFTD Volunteers Bruce Lipman and Erica Heffernan will be hosting an informational session at the Evanston Public Library on July 2 from 6-7:30 PM, CDT to offer powerful, personal perspectives on FTD. During this session, Bruce will share his insights as a care partner and support group volunteer, while Erica will discuss her experiences as…