What's New
November 9, 2024: In-Person Meet & Greet in Reno, NV
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by AFTD Ambassador Scott Oxarart. The event will be held from…
Astellas and AviadoBio Announce Exclusive License Agreement for FTD-GRN Gene Therapy
Astellas Pharma and AviadoBio have announced an exclusive license agreement for AVB-101, an experimental gene therapy for FTD-GRN currently undergoing a phase 1/2 clinical trial in the United States and…
November 9, 2024: FTD and Young Onset Meet & Greet in San Diego, CA
Join Alzheimer’s San Diego, For Their Thoughts Foundation, and AFTD for an informal Meet & Greet, have your questions answered, and learn more about the services and support the three…
Volunteer Update: Celebrating the Growth of FTD Awareness
It is not often that the community comes together in person, so it was extra special when AFTD Ambassadors Melissa Fisher and Scott Rose organized a gathering in Portland to…
Advancing Hope – AFTD Attends 2024 International Society for FTD Conference
The AFTD was proud to have ten staff members, and four Board members attend the International Society for FTD Conference (ISFTD) in Amsterdam in late September. This is a premier…
Study Finds That FTD and ALS Have Similar Cellular and Molecular Characteristics
A study by MIT and Mayo Clinic researchers published in the Cell journal finds that FTD and ALS have strikingly similar cellular and molecular characteristics despite their clinical differences. The…
The Power of Advocacy
AFTD would like to highlight the power of advocacy in contributing to the greater awareness of FTD. This year’s World FTD Awareness Week was filled with contributions large and small by advocates…
Dear HelpLine: Medication and FTD
Dear HelpLine, My mom has FTD and we have an upcoming appointment with her physician. We’d like to talk about medications to help with some of her symptoms. What should…
Psilera Announces Positive Preclinical Data for FTD Intervention Candidate
Biotechnology company Psilera announced positive preclinical data for its FTD drug candidate, moving it another step towards first-in-human studies. The company also underscored promising data from efficacy studies conducted by…
AFTD Care Partner Learning Series Webinar: Navigating Behavioral Variant FTD Symptoms
Behavioral variant FTD, or bvFTD, makes up almost half of all FTD diagnoses. Behavioral symptoms can fundamentally alter one’s personality, which can be extremely distressing for the person diagnosed and…