What's New
AFTD Grant Recipient Discusses Gene Therapy for FTD-GRN on Canadian TV
In an interview with the Canadian Broadcasting Corporation, Dr. Simon Ducharme of McGill University in Montreal discussed his recent administration of an experimental gene therapy to mitigate the progression of…
AFTD Volunteers Achieve FTD Awareness Week in 5 More States
In recent weeks, AFTD volunteers have successfully lobbied legislators to declare September 22-29, 2024, as FTD Awareness Week in Maryland, Ohio, Oklahoma, Tennessee, and West Virginia. They join New York,…
Dear HelpLine: Transitioning to Facility Care
Dear HelpLine, We have just made the difficult decision to move my mom into facility care not far from home. We are all new to this, what can we expect…
Advancing Hope: AFTD and University of Pennsylvania Host FTD Workshop
On June 11, 2024, AFTD collaborated with the University of Pennsylvania Frontotemporal Degeneration (FTD) Center on the FTD Clinical Research Learning Institute (CRLI) Research Ambassador Program, a one-day virtual FTD…
AFTD Webinar: Advocate for Awareness — Working with Lawmakers to Highlight FTD
FTD advocates can help bring awareness to their communities by working with lawmakers to issue proclamations and resolutions designating a statewide FTD awareness week. But what are proclamations and resolutions,…
ASPIRE-FTD Phase 1/2 Clinical Trial Opens First US Site at Ohio State University
Biopharmaceutical company AviadoBio announced on July 1 that its ASPIRE-FTD phase 1/2 clinical trial has opened its first trial site in the United States, at Ohio State University’s Wexner Medical…
AFTD Ambassador Reaches Midway Point of Coast-to-Coast Bike Ride to Raise FTD Awareness
KCTV, the CBS affiliate in Kansas City, Mo., aired an interview with AFTD Ambassador Spencer Cline, who recently reached the halfway point of his cross-country bike ride to raise awareness…
August 8, 2024: In-Person Meet & Greet in Portland, Ore.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Portland, Ore., on Thursday, August 8. The event will take place…
Tips & Advice: Finding Answers – FTD Research and You
When Damian McNamara, a staff writer for WebMD, learned that his cousin had been diagnosed with ALS and FTD due to a C9orf72 genetic variant, he began to wonder if…
Advancing Hope: AFTD Attends C9orf72 FTD/ALS Prevention Trial Workshop
A one-day C9orf72 FTD/ALS Prevention Trial Workshop was held in June 2024. The workshop was led by Dr. Adam Boxer (UCSF) and Dr. Michael Benatar (University of Miami) and enabled…
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