What's New
AFTD Brand Influencer Discusses Commitment to Caring
AFTD Brand Influencer Nicole Petrie shared her family’s FTD journey with host Lisa Opie on the podcast Miss Represented earlier this year. Petrie is a model, activist, and entrepreneur, and…
Study Investigates Incidence Rates of FTD and Other Young-Onset Dementias in Italy
A study published in the journal Diagnosis, Assessment & Disease Monitoring investigates the incidence of neurodegenerative young-onset dementias (YODs) like FTD in the Brescia province of Italy. As highlighted by…
AFTD Ambassador Shares Her Story on “All Home Care Matters” Podcast
AFTD Ambassador Debbie Elkins and AFTD Support and Education Director Esther Kane, MSN, RN-CDP, appeared on the podcast All Home Care Matters in July to discuss the changed nature of…
Interactive Map Simplifies Search for Help on New AFTD “Find Support” Page
AFTD has just launched a new page designed to simplify your search for answers. We added an FTD Support Group and Diagnostic Center Locator, which includes a map that allows…
AFTD Grant Recipient Discusses Gene Therapy for FTD-GRN on Canadian TV
In an interview with the Canadian Broadcasting Corporation, Dr. Simon Ducharme of McGill University in Montreal discussed his recent administration of an experimental gene therapy to mitigate the progression of…
AFTD Volunteers Achieve FTD Awareness Week in 5 More States
In recent weeks, AFTD volunteers have successfully lobbied legislators to declare September 22-29, 2024, as FTD Awareness Week in Maryland, Ohio, Oklahoma, Tennessee, and West Virginia. They join New York,…
Dear HelpLine: Transitioning to Facility Care
Dear HelpLine, We have just made the difficult decision to move my mom into facility care not far from home. We are all new to this, what can we expect…
Advancing Hope: AFTD and University of Pennsylvania Host FTD Workshop
On June 11, 2024, AFTD collaborated with the University of Pennsylvania Frontotemporal Degeneration (FTD) Center on the FTD Clinical Research Learning Institute (CRLI) Research Ambassador Program, a one-day virtual FTD…
AFTD Webinar: Advocate for Awareness — Working with Lawmakers to Highlight FTD
FTD advocates can help bring awareness to their communities by working with lawmakers to issue proclamations and resolutions designating a statewide FTD awareness week. But what are proclamations and resolutions,…
ASPIRE-FTD Phase 1/2 Clinical Trial Opens First US Site at Ohio State University
Biopharmaceutical company AviadoBio announced on July 1 that its ASPIRE-FTD phase 1/2 clinical trial has opened its first trial site in the United States, at Ohio State University’s Wexner Medical…
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