“When my mom decided in 2018 – rather unexpectedly – that she wanted to move to Florida, away from her grandchildren and close friends, it should have been a red flag for us,” says Michele. “We all made excuses for the changes we were seeing.”

While in Florida, Nancy, who had been active in her Peoria, Illinois community, became increasingly withdrawn and less empathetic. Initially receiving treatment for depression, Nancy was eventually diagnosed with PPA in 2022 at age 71.
“My mom’s diagnosis came right before the AFTD Education Conference in St. Louis – I knew I needed to go. While it was overwhelming at times, it is helpful to be among others who know what you’re going through.

(L to R): Donald, Nancy, and Michele at AFTD’s 2024 Education Conference

Today, Michele’s parents live with her in Illinois, where the family helps care for Nancy. They find empowerment by navigating FTD together – traveling to AFTD’s Education Conference in Houston, participating in support groups, and attending webinars.

“FTD is a rollercoaster, but I would encourage people to build a support network and be honest about needing help as a care partner – there’s no shame in that,” says Michele. “AFTD helps connect people to others and now I want to do what I can to help raise awareness in the community.”

Nancy with her husband Donald

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