Todo en familia para poner fin a FTD: el evento Food for Thought de Colonial Electric recauda más de 1 millón de dólares desde su inicio
AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD for nearly 30 years. Since Steve’s initial Colonial Electric Food for Thought gathering in 2014, the event, which features a nine-hole golf tournament, cocktail hour,…
Leer másUna conversación con un neurólogo de Denali Therapeutics
Recently, AFTD had a conversation with members of the Denali Therapeutics team, including Dr. Richard Tsai, to provide insights into their work to develop a therapeutic with Takeda to treat FTD-GRN (frontotemporal dementia caused by GRN gene mutations). Dr. Tsai is a neurologist at Denali where he partners with other scientists to design and conduct…
Leer másGracias a la generosidad del embajador de AFTD, los californianos reciben ayuda financiera crucial
Terry Walter, an AFTD Ambassador in California and Nevada, has been a force for positive change and support since 2008, when she began volunteering for AFTD. Over the years she has organized golf tournaments, convened people affected by FTD through her Meet & Greet events, and raised funds for AFTD’s mission with her annual Food…
Leer másProtegido: A Conversation with a Neurologist at Denali Therapeutics
No hay extracto porque es una entrada protegida.
Leer másSeminario web de la serie de aprendizaje para socios de atención de AFTD: Cómo afrontar las fiestas con un diagnóstico de FTD
The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences. In this webinar, AFTD HelpLine Manager Stephanie Quigley leads a discussion with members of AFTD’s Persons with FTD Advisory Council as they share ideas and…
Leer másDefensa de la AFTD: capacitación sobre resolución estatal
This training will cover the process of how to obtain a resolution — from identifying your legislators to receiving your approved resolution. It will also cover press strategies to maximize visibility and foster more awareness for FTD in your state. Attendees will receive and review the: 2025 Resolution Toolkit Resolution language Press toolkit Advocacy talking…
Leer másUna joven cuidadora habla sobre cómo encontró apoyo en medio de su experiencia con la enfermedad de Traumatismo Frontotemporal en el podcast Dementia UK
A young FTD caregiver named Lizzie discussed the grief, uncertainty, and unexpected responsibilities she faced as she cared for her father — all while navigating the natural changes of young adulthood — in a recent interview with “My Life With Dementia,” a podcast produced by the organization Dementia UK. When Lizzie graduated from college, she…
Leer másPerspectivas en el seminario web de FTD: Investigación de FTD 2024: de dónde venimos y hacia dónde nos dirigimos
The science of FTD is evolving at a rapid pace and it can be difficult to interpret the scientific advancements and how they may impact families facing an FTD diagnosis. In this Perspectives in FTD Research webinar, presented jointly by AFTD and the FTD Disorders Registry, AFTD’s Senior Director of Scientific Initiatives, Penny Dacks, PhD,…
Leer másSeminario web de AFTD: Serie de aprendizaje para cuidadores: cómo afrontar las fiestas con un diagnóstico de DFT
Los cambios que trae consigo un diagnóstico de DFT pueden dificultar la transición a las fiestas. Los cambios en la rutina de los viajes, las grandes multitudes y los días ajetreados pueden hacer que las vacaciones no sean un éxito. Únase a Stephanie Quigley, gerente de la línea de ayuda de AFTD, y a los miembros del Consejo asesor de personas con DFT mientras comparten ideas y formas en las que se han adaptado...
Leer másFomentando la esperanza: el personal de AFTD asiste a la cumbre NORD Breakthrough Summit en Washington, DC
Shana Dodge, PhD, AFTD’s Director of Research Engagement and Meghan Buzby, MBA, AFTD’s Director of Advocacy and Volunteer Engagement attended the National Organization for Rare Disorders (NORD) Breakthrough Summit, held October 20-22 in Washington, DC. NORD is an advocacy organization dedicated to individuals with rare diseases and is committed to the identification, treatment, and cure…
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