The Power of Advocacy
AFTD would like to highlight the power of advocacy in contributing to the greater awareness of FTD. This year’s World FTD Awareness Week was filled with contributions large and small by advocates who took their time to create awareness and fundraising events, who posted about FTD and AFTD on social media, and who worked with their legislators…
Leer másDear HelpLine: Medication and FTD
Dear HelpLine, My mom has FTD and we have an upcoming appointment with her physician. We’d like to talk about medications to help with some of her symptoms. What should we know about medication and FTD? While there are currently no medications available that can slow or stop FTD’s progression, some drugs can be prescribed…
Leer másPsilera Announces Positive Preclinical Data for FTD Intervention Candidate
Biotechnology company Psilera announced positive preclinical data for its FTD drug candidate, moving it another step towards first-in-human studies. The company also underscored promising data from efficacy studies conducted by the University of South Florida (USF). The drug, a compound called PSIL-006, is a psilocybin derivative that has a safe, non-hallucinogenic profile, making it a…
Leer másAFTD Care Partner Learning Series Webinar: Navigating Behavioral Variant FTD Symptoms
Behavioral variant FTD, or bvFTD, makes up almost half of all FTD diagnoses. Behavioral symptoms can fundamentally alter one’s personality, which can be extremely distressing for the person diagnosed and challenging for care partners, family members, and friends. Learning about and understanding these symptoms can help care partners approach behaviors and support the person with…
Leer másProtegido: A Conversation with Alector’s Vice President of Clinical Development
No hay extracto porque es una entrada protegida.
Leer másIn-Person Meet & Greet in Danville, CA
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by AFTD volunteer Judy Price. RSVP for this event by emailing judyaprice1@icloud.com. To learn more, download this flyer.
Leer másIn-Person Meet & Greet in Fairmont, WV
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by Debbie Elkins, AFTD Ambassador for West Virginia. RSVP for this event by emailing delkins@theaftd.org. To learn more, download this flyer.
Leer másArtículo invitado: “Sí, y…”, de Catherine Savini
Lidiar con los síntomas de la DFT puede ser difícil para los seres queridos, especialmente cuando alguien que vive con la enfermedad tiene problemas relacionados con la memoria. Sin embargo, como comparte Catherine Savini, enfrentar los síntomas con un “sí, y” en lugar de un “no, porque” puede convertir los encuentros con la frustración y el aislamiento en momentos significativos de diversión y conexión. Recientemente, una amiga cercana me contaba…
Leer másCuando una voz suena como un coro: la incansable campaña de Dawn Kirby para generar conciencia sobre la DFT
Dawn Kirby y su esposo, Tim, están difundiendo información sobre la DFT. Recientemente, la pareja apareció en un artículo en Prairie Press (Paris, Ill.), donde hablaron sobre su labor de sensibilización en favor de la DFT. Dawn y Tim tienen gratos recuerdos de haber visto a su hija, Kara Ike, alcanzar su pleno potencial en…
Leer más26 de octubre de 2024: Reunión y saludo en persona en Middletown, DE
Únase y aprenda de otras personas que comprenden el recorrido de FTD en este evento presencial de AFTD Meet & Greet, organizado por la voluntaria de AFTD Jeanne Cestone, que se llevará a cabo de 10:30 a 11:30 a. m. el sábado 26 de octubre de 2024. El evento se llevará a cabo en la biblioteca comunitaria Appoquinimink en Middletown, Del. (204 E. Main Street). Confirme su asistencia a este evento…
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