Investigación
As a leader in advancing the science of FTD, AFTD works with a diverse, global community to further biomarker discovery and development of the first approved therapies, and to empower people impacted to engage in research.
AFTD Research Updates
Representatives from 16 international companies actively pursuing FTD drug development joined AFTD staff to plan the 2023 FTD Research Roundtable meeting.
The inaugural Mesa redonda de investigación de FTD, held in September 2023, welcomed more than 100 participants from biopharma, academia, government agencies, advocacy organizations, and genetic families to identify barriers and common challenges in FTD-focused drug development and propose best practices for designing clinical trials.
In collaboration with the FTD Disorders Registry, AFTD presented three Perspectivas en la investigación de FTD seminarios web, addressing topics such as legal considerations and protections regarding genetic counseling and predictive testing; clinical trials focused on CBS and PSP, two FTD disorders; and interventions being developed for genetic forms of the disease.
In early 2024, the FTD Disorders Registry launched an upgraded platform to improve user experience, data collection and management, and accessibility for a global community of researchers. Registry staff shared information on how to participate in research at AFTD’s 2024 Education Conference.
FTD Disorders Registry Participants
Hacer clic aquí to learn more about the FTD Disorders Registry.
Fondo de la familia Holloway
El 2023 Holloway Summit featured discussions on overcoming shared challenges in biomarker discovery.
AFTD Board members at the 2023 Holloway Summit (L to R): Kristin Schneeman, Gail Andersen, Kristin Holloway, Board Chair Kimberly Pang Torres
Established in 2021 by AFTD Board member Kristin Holloway and the Holloway family in honor of Kristin’s husband, Lee, the Holloway Family Fund expanded our Postdoctoral Fellowship program and created the Holloway Summit, an annual meeting designed to convene global leaders in FTD-focused research to propose solutions for therapeutic development.
Partnering to Advance Discoveries
Awards and Grants
In fiscal year 2024, we awarded $1.57 million in new research grants supporting nine studies, including:
Zachary McEachin, PhD | Emory School of Medicine
2024 Pathways for Hope Pilot Grant
Dra. Eline Bunnik | Centro Médico Erasmus
2024 Well-Being in FTD Pilot Grant
Tanav Popli, MD | Universidad de Michigan
Beca de Formación en Investigación Clínica en FTD
To learn more about other AFTD-funded projects, visit theaftd.org/for-researchers/grants-funded
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