Manejo de un diagnóstico: la historia de FTD de Brian
In 2020, when Brian Dowden was in his late 30s, he noticed changes in his cognitive abilities while preparing to take the licensing exams required by his profession. “It was supposed to be an easy test for the most part,” he said. “I started studying and immediately began to struggle. I just couldn’t retain the…
Leer másLorain County Senior Expo
AFTD volunteer Sharon Land will be hosting an information table at the Lorain County Senior Expo on September 10 from 10 AM-1 PM EDT. Go to the event website to learn more or register.
Leer másSalud mental en comunidades subrepresentadas: reducir el estigma y superar barreras
La voluntaria de la AFTD, Sharon Land, organizará una mesa informativa en el evento Salud mental en comunidades subrepresentadas: reducción del estigma y superación de barreras, que se llevará a cabo en la YWCA de Elyria el miércoles 31 de julio de 12 a 2 p.m.EDT. Visite la página web del evento para obtener más información o registrarse.
Leer másUn estudio británico/holandés descubre el papel de las mutaciones del gen ANG en la ELA-FTD
Researchers at the University of Bath in the United Kingdom and the University Medical Center Utrecht in the Netherlands have uncovered an association between an inherited genetic variant of the angiogenin (ANG) gene and ALS-FTD, according to a study published in The Journal of Pathology. It is now recognized that a pathogenic expansion of the…
Leer másAFTD y ALLFTD colaboran en un vídeo sobre donación de cerebros
AFTD and ALLFTD have partnered to create a brief animated video that explains the brain donation process, as well as how it helps FTD researchers and families affected by FTD. Discussing brain donation can be difficult for families, so beginning the conversation early can provide family members with the time to consider options, share preferences,…
Leer másEstimada línea de ayuda: Apoyo para FTD familiar y genética
Dear HelpLine, My mom was recently diagnosed with FTD; my late uncle and grandmother had dementia, and I’m concerned that this may be genetic. Is there support for people facing uncertain genetic status? Most people diagnosed with FTD have a sporadic form of the disorder, meaning there is no apparent familial history of neurodegenerative disease.…
Leer másDefensor de la concientización: trabajar con legisladores para resaltar la FTD
Los defensores de FTD pueden ayudar a crear conciencia en sus comunidades trabajando con los legisladores para emitir proclamaciones y resoluciones que designen una semana de concientización sobre FTD en todo el estado. Pero, ¿qué son las proclamaciones y resoluciones y cómo pueden los defensores impulsarlas? En este seminario web sobre promoción, el personal de la AFTD explicará la diferencia y compartirá los pasos que puede seguir...
Leer másFTD: La otra demencia
La embajadora de la AFTD, Nanci Anderson, brindará una descripción general de la FTD, junto con los recursos disponibles en las Ciudades Gemelas y de la AFTD. Descargue este folleto para obtener más información.
Leer más17 de julio de 2024 - FTD: La otra demencia
AFTD Ambassador Nanci Anderson will provide an overview of FTD, along with available resources available in the Twin Cities and from AFTD. The event will take place on July 17, 2024, from 10:30 a.m. – 11:30 a.m. CT. It will be located at the Plymouth Community Center’s Education Wing (Classroom 1C), at 14800 34th Avenue…
Leer másVesper Bio completa la etapa de dosis única ascendente de su ensayo clínico para un posible tratamiento modificador de la enfermedad para FTD-GRN
Biotechnology company Vesper Bio announces it has completed the single ascending dose stage in its clinical trial of its potentially disease-modifying treatment for FTD-GRN. The recently completed trial evaluated the safety and tolerability of the orally administered drug VES001 in people without FTD. The goal of the single ascending dose stage was to determine how…
Leer más
Spanish (Spain) 
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Danish 
Polish