Guest Feature: “Yes, and…” by Catherine Savini
Navigating the symptoms of FTD can be difficult for loved ones, especially when someone living with the disease experiences memory-related challenges. However, as Catherine Savini shares, meeting symptoms with “yes, and” instead of “no, because” can turn encounters with frustration and isolation into meaningful moments of playfulness and connection. Recently, a close friend was telling me a…
Leer másCuando una voz suena como un coro: la incansable campaña de Dawn Kirby para generar conciencia sobre la DFT
Dawn Kirby and her husband, Tim, are getting the word out about FTD. The couple were recently featured in an article in the Prairie Press (Paris, Ill.), where they talked about their advocacy on behalf of FTD awareness. Dawn and Tim have fond memories of watching their daughter, Kara Ike, come into her own in…
Leer más26 de octubre de 2024: Reunión y saludo en persona en Middletown, DE
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Jeanne Cestone, taking place from 10:30-11:30 a.m. on Saturday, October 26, 2024. The event will be held at the Appoquinimink Community Library in Middletown, Del. (204 E. Main Street). RSVP for this event…
Leer másRecepción en persona en Middletown, DE
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Jeanne Cestone. RSVP for this event by emailing jeanne_ve_c@yahoo.com. To learn more, download this flyer.
Leer másUnderstanding Dementia With a Focus on Alzheimer’s & Frontotemporal Dementia (FTD)
AFTD Ambassador Dawn O’Gara will be joining representatives of the Alzheimer’s Association to hold a virtual presentation on FTD and Alzheimer’s disease on Tuesday, October 29, 2024 from 6:00 PM – 7:00 PM EDT. The presentation will provide participants with the opportunity to learn about the signs and symptoms of FTD and Alzheimer’s, and the resources available…
Leer másEvento Subaru Share the Love 2024
In memory of Georgi Sidoris, Scott Campbell of Subaru of Muskegon designated AFTD as one of their Hometown Charities for the 2024 Subaru Share the Love Event. This event will take place from November 21-January 2 and during the event, for every new Subaru that this dealership sells or leases, $75 will be donated to…
Leer másLa demencia es el infierno: crucero en coche por el Cañón del Infierno
AFTD Ambassador Scott Rose is hosting a car cruise on Labor Day weekend 2025 in Portland Oregon to raise funds and FTD awareness. The cruise will be a beautiful 5 to 6 hour drive on the Hells Canyon Scenic Byway and is open to both clubs and individuals. Preregistration will include a t-shirt, AFTD info,…
Leer másVoluntario de AFTD obtiene 3 proclamaciones de la Semana de Concientización sobre FTD en Ohio
Lima, Ohio is the most recent community to officially proclaim September 22-29 as FTD Awareness Week. Resident Jack George successfully advocated for the official proclamation, which Lima Mayor Sharetta Smith presented on September 4th at a public meeting. George feels strongly about advocating for FTD awareness because of his own circuitous diagnosis journey. “It took…
Leer másFomentando la esperanza: la AFTD organiza un panel asesor de la industria
El 8 y 9 de agosto, la AFTD organizó un panel asesor de la industria en el que un grupo de personas cuyas vidas se vieron afectadas por la DFT compartieron sus experiencias y perspectivas con empresas que trabajan en posibles tratamientos para la DFT. El panel incluyó a personas diagnosticadas con DFT, parejas de cuidadores actuales y anteriores y familiares biológicos de personas con DFT…
Leer másArtículo de invitado: El viaje de una mujer: desde el diagnóstico hasta el intento de suicidio y la aceptación de la vida
Septiembre es el Mes de la Prevención del Suicidio. A continuación, Deb Jobe, miembro del Consejo Asesor de Personas con DFT de la AFTD, comparte con valentía la historia de su intento de suicidio después de recibir un diagnóstico de DFT y cómo pasó de querer terminar con su vida a aceptarlo por completo. Mientras estoy sentada aquí en mi patio trasero sintiendo el calor del sol, mirando…
Leer más
Spanish (Spain) 
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Danish 
Polish