Empower Help & Hope this #Giving Tuesday
Michele Howerter, whose mom Nancy is living with primary progressive aphasia, is sharing her family’s story for Giving Tuesday – a day to recognize and support mission-focused organizations worldwide. AFTD will once again participate in this annual campaign to raise awareness of FTD and funds to drive our work on behalf of all facing this…
Lee masAdvancing Hope: Sponsored Testing Programs; opportunities for no-cost genetic testing
Once you have chosen to pursue genetic testing, it can be frustrating to learn that the cost is too high, or insurance will not cover genetic testing. Sponsored testing programs (STPs) provide the opportunity to access genetic testing at no-cost, removing financial barriers and enabling greater access to genetic counseling and testing. STPs are collaborations…
Lee masFerrer administra la dosis al primer participante en un estudio de fase 2 para el tratamiento de la PSP
Pharmaceutical company Ferrer announced that it has dosed the first participant in the PROSPER phase 2 clinical trial for an experimental treatment for progressive supranuclear palsy. The ongoing trial seeks to evaluate the safety and efficacy of the drug FNP-223, which is designed to slow the progression of the disease. The drug works to prevent…
Lee masArtículo especial del Consejo Asesor de Personas con DFT: Locura navideña
This article was written by a person with FTD to highlight the challenges of dealing with the holidays with an FTD diagnosis. AFTD hopes care partners and those diagnosed can benefit from the perspective presented here. By Cindy Odell, former Council member All holidays can be stressful for anyone at any time. It doesn’t matter…
Lee masTodo en familia para poner fin a FTD: el evento Food for Thought de Colonial Electric recauda más de 1 millón de dólares desde su inicio
AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD for nearly 30 years. Since Steve’s initial Colonial Electric Food for Thought gathering in 2014, the event, which features a nine-hole golf tournament, cocktail hour,…
Lee masUna conversación con un neurólogo de Denali Therapeutics
Recently, AFTD had a conversation with members of the Denali Therapeutics team, including Dr. Richard Tsai, to provide insights into their work to develop a therapeutic with Takeda to treat FTD-GRN (frontotemporal dementia caused by GRN gene mutations). Dr. Tsai is a neurologist at Denali where he partners with other scientists to design and conduct…
Lee masGracias a la generosidad del embajador de AFTD, los californianos reciben ayuda financiera crucial
Terry Walter, an AFTD Ambassador in California and Nevada, has been a force for positive change and support since 2008, when she began volunteering for AFTD. Over the years she has organized golf tournaments, convened people affected by FTD through her Meet & Greet events, and raised funds for AFTD’s mission with her annual Food…
Lee masProtegido: A Conversation with a Neurologist at Denali Therapeutics
No hay extracto porque es una entrada protegida.
Lee masSeminario web de la serie de aprendizaje para socios de atención de AFTD: Cómo afrontar las fiestas con un diagnóstico de FTD
The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences. In this webinar, AFTD HelpLine Manager Stephanie Quigley leads a discussion with members of AFTD’s Persons with FTD Advisory Council as they share ideas and…
Lee masDefensa de la AFTD: capacitación sobre resolución estatal
Esta capacitación cubrirá el proceso de cómo obtener una resolución, desde la identificación de sus legisladores hasta la recepción de su resolución aprobada. También cubrirá las estrategias de prensa para maximizar la visibilidad y fomentar una mayor conciencia sobre FTD en su estado. Los asistentes recibirán y revisarán: Kit de herramientas de resolución 2025 Lenguaje de resolución Kit de herramientas de prensa Conversaciones de defensa…
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