The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Omni Interlocken Hotel
Denver, CO

AFTD 2025
Education Conference

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Connect · Learn · Engage

May 1-2, 2025

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Wednesday, February 26, 2025 | 4-5 p.m. ET

HEALTHCARE PROFESSIONAL WEBINAR

At the Intersection of FTD and the Law

Chief of the Division of Behavioral and Cognitive Neurology, Director of the Frontotemporal Dementia Clinic, and Assistant Professor of Neurology at Vanderbilt University Medical Center

Richard Ryan Darby, MD

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Dear HelpLine: Home and Community Care Options

Dear HelpLine, My spouse has FTD. I have been caring for them in our home, and I’ve reached the point where I need more help. But I don’t even know…

Text: Managing the Emotional Impact of Job Loss in FTD by Kevil Rhodes, Co-Chair, AFTD Persons with FTD advisory Council | Background: A photo of AFTD Advisory Council Co-Chair Kevil Rhodes

The Lived Experience of FTD: Managing the Emotional Impact of Job Loss in FTD

When someone is diagnosed with FTD, it is almost guaranteed that they will eventually have to leave their job, usually long before they are ready to do so. The abrupt…

Remember Me Podcast Discusses Grief with AFTD Staff in Recent Episode

In a special bonus episode of the “Remember Me” podcast, AFTD Support & Education Director Esther Kane, MSN, RN-CDP, and Support Services Manager Sarah Lopata, MS joined hosts Rachael Martinez…

AFTD Webinar: Paving the Path Forward — Advancing AFTD’s Public Policy Priorities

Families living with FTD have significant unmet needs: access to quality dementia care, policies that are friendlier to unpaid caregivers, and a deeper public investment into disease-modifying treatments. In this…

Upcoming UCSF Trial to Evaluate Effectiveness of Three Drugs for PSP

An upcoming clinical trial conducted by the University of California, San Francisco (UCSF) will simultaneously evaluate multiple drugs to determine their effectiveness against progressive supranuclear palsy. The trial has been…

Making a Difference: AFTD Introduces First-Ever Advocacy Agenda

AFTD has unveiled a robust and ambitious advocacy agenda for 2025, emphasizing the urgent need to better support families facing FTD while pushing for deeper public investments into FTD research…

In TEDx Talk, Neuroscientist Shares Her Father’s FTD Story and Her Hope for Dementia Research Breakthroughs

Leila Allen, PhD, of Florida International University (FIU), discussed the groundbreaking dementia research that she and her colleagues are performing with pig models and artificial intelligence during a recently published…

Extracellular Vesicles in Plasma Could be FTD-ALS Diagnostic Biomarker, Study Finds

A study published in Nature Medicine finds that a type of particle associated with specific cell subtypes could potentially be utilized as a biomarker for FTD and ALS disorders. The…

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