What's New
February 22, 2025: In-Person Meet & Greet in Sparks, Nev.
AFTD Ambassador Scott Oxarart invites anyone impacted by FTD to join others on the FTD journey for a two-mile walk beginning at Nevada Veterans Memorial Plaza in Sparks (300 Howard…
February 9, 2025: Seattle, Wash. Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in Seattle, Wash., and its surrounding communities on Sunday, February…
Making a Difference: AFTD Introduces First-Ever Advocacy Agenda
AFTD has unveiled a robust and ambitious advocacy agenda for 2025, emphasizing the urgent need to better support families facing FTD while pushing for deeper public investments into FTD research…
In TEDx Talk, Neuroscientist Shares Her Father’s FTD Story and Her Hope for Dementia Research Breakthroughs
Leila Allen, PhD, of Florida International University (FIU), discussed the groundbreaking dementia research that she and her colleagues are performing with pig models and artificial intelligence during a recently published…
Extracellular Vesicles in Plasma Could be FTD-ALS Diagnostic Biomarker, Study Finds
A study published in Nature Medicine finds that a type of particle associated with specific cell subtypes could potentially be utilized as a biomarker for FTD and ALS disorders. The…
Denali and Takeda Open FTD-GRN Clinical Trial Site at UPenn
Denali Therapeutics and Takeda Pharmaceutical Company’s phase 1/2 clinical trial for FTD caused by GRN mutations is opening its first U.S.-based trial site at the University of Pennsylvania (UPenn). The…
Tips & Advice: Incontinence – A Troubling Symptom
Incontinence is a common symptom of FTD and other dementias. But for both care partners and persons diagnosed, incontinence can be one of the more difficult symptoms to manage or even…
Ohio Care Partner Shares Story to Help Others on the FTD Journey
Mary Kay Verhoff, a former FTD care partner from Ohio, recently published a book that tells the story of coming to terms with and navigating her husband’s decline from FTD.…
January 25, 2025: Virtual Meet & Greet for MT, WY, ND, and SD
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in Montana, Wyoming, North Dakota, and South Dakota. The event…
Can a Tau PET Tracer Aid FTD Diagnosis? Study Explores How Tracer Performs in Other Tauopathies
A study published in Science Translational Medicine explores how well the brain imaging tau PET tracer F-MK-6240 (flortaucipir) captures the presence of underlying protein clumps seen in post-mortem Alzheimer’s tissue.…
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