What's New
In-Person Meet & Greet in Scottsdale, Arizona
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Scottsdale, AZ, hosted by AFTD volunteer Lora Johnson, on May 10,…
Dear HelpLine: Advanced Care Planning
Dear HelpLine, My spouse was recently diagnosed with FTD and we want to make sure we are prepared for the future. Our doctor said to consider advance care planning, but…
Advancing Hope: AFTD Announces 2025 FTD Research Roundtable Leadership Committee
AFTD has launched its 3rd year of the FTD Research Roundtable. This program offers a forum for drug developers, regulators, academic leaders, and advocates to discuss shared challenges and potential…
N.Y. Senator Hinchey Reintroduces Bill to Create State FTD Registry
A bill that would establish a registry of FTD diagnoses in New York State was reintroduced in January by New York state Sen. Michelle Hinchey. Sen. Hinchey and AFTD’s Director…
Regional, Virtual Meet & Greet for Idaho, Oregon, and Washington for Parents Caring for a Spouse With FTD
Join and learn from others who understand the FTD journey at this virtual, regional AFTD Meet & Greet event for parents whose spouses are diagnosed with FTD in Idaho, Oregon,…
Review Article Explores Lived Experiences of Ceasing Driving Due to Young-Onset Dementia
A review article published in the journal BMC Geriatrics explores and summarizes the lived experiences of ceasing driving due to young-onset dementias like FTD, finding that families are often left…
Help & Hope: Join AFTD’s 2025 Education Conference Via Zoom on May 2
The 2025 AFTD Education Conference will be livestreamed via Zoom on May 2, offering a valuable opportunity to connect with others who understand, learn from FTD experts, and engage with…
“Inside Edition” Highlights Upcoming Documentary About a Family’s FTD Journey
A recent episode of Inside Edition explores the experiences of the late Susan Suchan and her family as they navigated her symptoms and eventual FTD diagnosis. The family’s FTD journey…
Perspectives in FTD Research Webinar: AFTD and You – Partners in Drug Development
How does a great scientific idea become an effective treatment? It’s a long and complicated process! Drug development involves many key players, including researchers, companies, regulators, funders, patient advocacy organizations…
Statement from The Association for Frontotemporal Degeneration on the Need for Robust and Consistent Medical Research Funding
The Association for Frontotemporal Degeneration (AFTD) continues to urgently advocate for robust and consistent funding for the National Institutes of Health (NIH) in FY 2026 appropriations. Despite being the most…
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