What's New
N.Y. Senator Hinchey Reintroduces Bill to Create State FTD Registry
A bill that would establish a registry of FTD diagnoses in New York State was reintroduced in January by New York state Sen. Michelle Hinchey. Sen. Hinchey and AFTD’s Director…
Regional, Virtual Meet & Greet for Idaho, Oregon, and Washington for Parents Caring for a Spouse With FTD
Join and learn from others who understand the FTD journey at this virtual, regional AFTD Meet & Greet event for parents whose spouses are diagnosed with FTD in Idaho, Oregon,…
Review Article Explores Lived Experiences of Ceasing Driving Due to Young-Onset Dementia
A review article published in the journal BMC Geriatrics explores and summarizes the lived experiences of ceasing driving due to young-onset dementias like FTD, finding that families are often left…
Help & Hope: Join AFTD’s 2025 Education Conference Via Zoom on May 2
The 2025 AFTD Education Conference will be livestreamed via Zoom on May 2, offering a valuable opportunity to connect with others who understand, learn from FTD experts, and engage with…
“Inside Edition” Highlights Upcoming Documentary About a Family’s FTD Journey
A recent episode of Inside Edition explores the experiences of the late Susan Suchan and her family as they navigated her symptoms and eventual FTD diagnosis. The family’s FTD journey…
Perspectives in FTD Research Webinar: AFTD and You – Partners in Drug Development
How does a great scientific idea become an effective treatment? It’s a long and complicated process! Drug development involves many key players, including researchers, companies, regulators, funders, patient advocacy organizations…
Statement from The Association for Frontotemporal Degeneration on the Need for Robust and Consistent Medical Research Funding
The Association for Frontotemporal Degeneration (AFTD) continues to urgently advocate for robust and consistent funding for the National Institutes of Health (NIH) in FY 2026 appropriations. Despite being the most…
FTD Science Digest: Making FTD Visible – The Critical Role of Biomarkers in Diagnosis and Treatment
Biomarkers are critical to understanding and treating any disease. A biomarker is something measurable in the body that can indicate a disease’s presence and severity. High blood pressure, for example,…
AFTD Joins Nearly 150 Supporters in Letter Urging Congress to Reject Medicaid and SNAP Cuts
AFTD joined nearly 150 organizations and individuals in a letter penned by the Alliance for Aging Research urging congressional leaders to reject proposed cuts to Medicaid and the Supplemental Nutrition…
The Lived Experience of FTD: Overeating and Other Temptations in FTD
By Anne Fargusson, RN, AFTD Persons with FTD Advisory Council Among the hallmark symptoms of FTD is an oral fixation, which can lead to overeating. FTD may also cause a…
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