Debra Niehoff, Kim Jenny, and Shana Dodge from AFTD and Sweatha Reddy from the FTD Disorders Registry attended the Alzheimer’s Association International Conference (AAIC), which took place in Philadelphia starting July 26, 2024. AAIC welcomed more than 9,000 attendees from 93 countries and included sessions and posters on the science of Alzheimer’s Disease and related dementias, including FTD. Sessions covered topics such as basic science and pathogenesis, biomarkers, clinical manifestations, drug development, public health, and dementia care. Dr. Dodge presented on data collected by AFTD and the FTD Disorders Registry on FTD care partner perspectives on clinical research. She noted that as FTD clinical trials typically require co-participation of a study partner, care partner perspectives on research are critical to understanding how to support people participating in clinical research. AAIC also gave AFTD staff the opportunity to meet and network with other patient advocacy organizations, government agencies, academic researchers, research funders, biopharmaceutical companies, and people with lived experience of dementia.

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