AFTD is pleased to share that the FTD-Studie zur wirtschaftlichen Belastung, the first of its kind, is now underway.

Conducted by Dr. James Galvin, the study will quantify the economic burden FTD imposes on a family by surveying current family and caregivers of someone living with a diagnosis of FTD, as well as those who have served as caregivers within the last 12 months.

As explained in an article in AFTD’s 2015 fall newsletter, the study represents an important advance in understanding the far-reaching consequences of FTD for families, the healthcare system and society at large. In addition, it is expected to provide the much-needed quantitative data to support and expand advocacy efforts, inform policymakers and increase research funding to develop effective treatments.