Eine Frau aus Iowa bespricht ihren genetischen FTD-Status im Fox News-Interview
Alyssa Nash, a 27-year-old hospital receptionist, shared her experiences on the FTD journey and learning she carries a genetic FTD causing mutation in a May 19 article published by Fox News. As shared by Nash’s mother, AFTD Ambassador Deb Scharper, in an interview with The Healthy, Nash’s father, Tommy, first began to show signs of…
WeiterlesenDr. Chiadi Onyike wird zum Vorsitzenden des AFTD Medical Advisory Council gewählt
During their annual meeting at the 2023 Education Conference, AFTD’s Board of Directors named Chiadi Onyike, MD, as Chair-Elect of the Medical Advisory Council (MAC). Dr. Onyike will serve as chair-elect while Bradford Dickerson, MD, the current serving chair of the MAC, completes the remaining two years of his term. Following Dr. Dickerson’s term, Dr.…
WeiterlesenGastbeitrag: „That Thin Thread Blooms into A Rainbow“ – Die FTD-Reise aus der LGBTQIA+-Perspektive
The FTD journey is wrought with hardships, with families often facing a lengthy diagnostic process, steep costs for proper FTD care, and feelings of isolation. But some living with FTD face added difficulty. Members of the LGBTQIA+ community might also contend with hardships related to their sexual orientation or gender identity. For care partner Richard…
WeiterlesenTipps und Ratschläge: Verhaltensänderungen dokumentieren
Many behaviors caused by FTD, such as aggression, disinhibition, delusions, and apathy, are challenging and distressing for people diagnosed and care partners. Such behaviors often result from an unmet need, negative emotions, anxiety, or pain. Complicating matters, these behaviors – and their triggers – will change as the disease progresses. However, with patience and a…
WeiterlesenAdvancing Hope: Beschleunigung der Arzneimittelentdeckung für FTD – Neue Auszeichnungen aus einer langjährigen Partnerschaft
Before FTD researchers can initiate a clinical trial of a new medication, they must carry out preclinical testing to better understand its effects on the body, confirm that it binds to its intended target, determine the best dose, and demonstrate its effectiveness in animal models of FTD. Since 2007, AFTD has partnered with the Alzheimer’s…
WeiterlesenWave Life Sciences beendet FTD/ALS-Studie mit WVE-004
Yesterday, Wave Life Sciences announced that it ended its FOCUS-C9 clinical trial for the drug WVE-004, which was being evaluated as a potential treatment for FTD and amyotrophic lateral sclerosis (ALS) cases associated with a variation in the gene C9orf72, the most common genetic cause of FTD. Despite this news, AFTD applauds Wave Life Science…
WeiterlesenVoranschreitende Hoffnung: Führende Vertreter der FTD- und ALS-Forschung treffen sich in Arizona zum Gipfel zum C9orf72-Gen
In March, prominent leaders in FTD and ALS research gathered in Scottsdale, Arizona, for the first-ever summit on the C9orf72 gene, variations of which constitute the most common cause of genetic FTD and ALS. The event was supported by generous funding from David and Weezie Reese and was hosted by the Barrow Neurological Foundation. The…
WeiterlesenStudienergebnisse zeigen, dass FTD in einigen Fällen einen kreativen Funken erzeugen kann
Brain atrophy patterns specific to FTD can let loose previously suppressed creative abilities in some people diagnosed with the disease, according to a study published earlier this year in JAMA Neurology. The phenomenon has been studied by researchers for over 20 years, including prominent FTD researchers such as Bruce Miller, MD, a distinguished professor at…
Weiterlesen„Was wünschen sich Menschen mit PPA von der Logopädie?“ Aktuelle Studienfragen
A study published in the International Journal of Language and Communication Disorders explores the needs of people affected by primary progressive aphasia (PPA) and how speech-language therapy (SLT) can be better tailored to help them. While there are currently no approved disease-modifying treatments for PPA, the study highlights how non-medicinal approaches like SLT can make…
WeiterlesenSportler des Monats Mai: Dane Sundseth
AFTD’s May Charity Miles Athlete of the Month is Dane Sundseth from Southern California! After a friend of his family member was diagnosed with FTD, Dane made a choice to support his friend and their family through Charity Miles. Between Dane’s dedication to his friend, his commitment to supporting charities, and his passion for running…
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