Managing a Diagnosis: Brian’s FTD Story
In 2020, when Brian Dowden was in his late 30s, he noticed changes in his cognitive abilities while preparing to take the licensing exams required by his profession. “It was supposed to be an easy test for the most part,” he said. “I started studying and immediately began to struggle. I just couldn’t retain the…
WeiterlesenLorain County Senior Expo
AFTD volunteer Sharon Land will be hosting an information table at the Lorain County Senior Expo on September 10 from 10 AM-1 PM EDT. Go to the event website to learn more or register.
WeiterlesenMental Health in Underrepresented Communities: Reducing Stigma & Overcoming Barriers
AFTD volunteer Sharon Land will be hosting an information table at the event Mental Health in Underrepresented Communities: Reducing Stigma & Overcoming Barriers, being held at the YWCA of Elyria on Wednesday, July 31 from 12-2 PM EDT. Visit the event webpage to learn more or register.
WeiterlesenBritisch-niederländische Studie entdeckt Rolle von ANG-Genmutationen bei ALS-FTD
Researchers at the University of Bath in the United Kingdom and the University Medical Center Utrecht in the Netherlands have uncovered an association between an inherited genetic variant of the angiogenin (ANG) gene and ALS-FTD, according to a study published in The Journal of Pathology. It is now recognized that a pathogenic expansion of the…
WeiterlesenAFTD und ALLFTD arbeiten bei einem Video zur Gehirnspende zusammen
AFTD and ALLFTD have partnered to create a brief animated video that explains the brain donation process, as well as how it helps FTD researchers and families affected by FTD. Discussing brain donation can be difficult for families, so beginning the conversation early can provide family members with the time to consider options, share preferences,…
WeiterlesenLiebe HelpLine: Unterstützung bei familiärer und genetischer FTD
Dear HelpLine, My mom was recently diagnosed with FTD; my late uncle and grandmother had dementia, and I’m concerned that this may be genetic. Is there support for people facing uncertain genetic status? Most people diagnosed with FTD have a sporadic form of the disorder, meaning there is no apparent familial history of neurodegenerative disease.…
WeiterlesenFür mehr Bewusstsein sorgen: Zusammenarbeit mit Gesetzgebern, um auf FTD aufmerksam zu machen
FTD advocates can help bring awareness to their communities by working with lawmakers to issue proclamations and resolutions designating a statewide FTD awareness week. But what are proclamations and resolutions, and how can advocates push for them? In this Advocacy Webinar, AFTD staff will explain the difference and share the steps that you can take…
WeiterlesenFTD: Die andere Demenz
AFTD-Botschafterin Nanci Anderson gibt einen Überblick über FTD sowie über die in den Twin Cities und von AFTD verfügbaren Ressourcen. Laden Sie diesen Flyer herunter, um mehr zu erfahren.
Weiterlesen17. Juli 2024 — FTD: Die andere Demenz
AFTD Ambassador Nanci Anderson will provide an overview of FTD, along with available resources available in the Twin Cities and from AFTD. The event will take place on July 17, 2024, from 10:30 a.m. – 11:30 a.m. CT. It will be located at the Plymouth Community Center’s Education Wing (Classroom 1C), at 14800 34th Avenue…
WeiterlesenVesper Bio schließt Phase der klinischen Studie mit ansteigender Einzeldosis für eine mögliche krankheitsmodifizierende Behandlung von FTD-GRN ab
Biotechnology company Vesper Bio announces it has completed the single ascending dose stage in its clinical trial of its potentially disease-modifying treatment for FTD-GRN. The recently completed trial evaluated the safety and tolerability of the orally administered drug VES001 in people without FTD. The goal of the single ascending dose stage was to determine how…
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