What's New
March 13, 2025: Northern Fort Myers, FL In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Julie Moore and starting at 10:00 a.m. on…
FTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research
An article published in the journal Alzheimer’s & Dementia identifies gaps in current FTD research caused by disparities in access to proper dementia care and research centers, and outlines ways…
The Lived Experience of FTD: FTD and Intimacy
In the following article, Anne Fargusson, RN, a member of the Persons with FTD Advisory Council, writes about intimacy and FTD. Intimacy can be an uncomfortable word. Years ago, when…
Vesper Bio Clinical Trial for FTD-GRN Enters Phase Ib/IIa
Danish biotechnology company Vesper Bio announced in January that its clinical trial for a potentially disease-modifying drug for FTD-GRN is proceeding to phase Ib/IIa. In FTD caused by an inherited…
Dear HelpLine: Home and Community Care Options
Dear HelpLine, My spouse has FTD. I have been caring for them in our home, and I’ve reached the point where I need more help. But I don’t even know…
The Lived Experience of FTD: Managing the Emotional Impact of Job Loss in FTD
When someone is diagnosed with FTD, it is almost guaranteed that they will eventually have to leave their job, usually long before they are ready to do so. The abrupt…
Remember Me Podcast Discusses Grief with AFTD Staff in Recent Episode
In a special bonus episode of the “Remember Me” podcast, AFTD Support & Education Director Esther Kane, MSN, RN-CDP, and Support Services Manager Sarah Lopata, MS joined hosts Rachael Martinez…
AFTD Webinar: Paving the Path Forward — Advancing AFTD’s Public Policy Priorities
Families living with FTD have significant unmet needs: access to quality dementia care, policies that are friendlier to unpaid caregivers, and a deeper public investment into disease-modifying treatments. In this…
Upcoming UCSF Trial to Evaluate Effectiveness of Three Drugs for PSP
An upcoming clinical trial conducted by the University of California, San Francisco (UCSF) will simultaneously evaluate multiple drugs to determine their effectiveness against progressive supranuclear palsy. The trial has been…
February 22, 2025: In-Person Meet & Greet in Sparks, Nev.
AFTD Ambassador Scott Oxarart invites anyone impacted by FTD to join others on the FTD journey for a two-mile walk beginning at Nevada Veterans Memorial Plaza in Sparks (300 Howard…
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