Subaru Del kærlighedsbegivenheden 2024
In memory of Georgi Sidoris, Scott Campbell of Subaru of Muskegon designated AFTD as one of their Hometown Charities for the 2024 Subaru Share the Love Event. This event will take place from November 21-January 2 and during the event, for every new Subaru that this dealership sells or leases, $75 will be donated to…
Læs mereDemens er helvede: Hells Canyon Car Cruise
AFTD Ambassador Scott Rose is hosting a car cruise on Labor Day weekend 2025 in Portland Oregon to raise funds and FTD awareness. The cruise will be a beautiful 5 to 6 hour drive on the Hells Canyon Scenic Byway and is open to both clubs and individuals. Preregistration will include a t-shirt, AFTD info,…
Læs mereAFTD Volunteer sikrer 3 FTD Awareness Week Proclamations i Ohio
Lima, Ohio is the most recent community to officially proclaim September 22-29 as FTD Awareness Week. Resident Jack George successfully advocated for the official proclamation, which Lima Mayor Sharetta Smith presented on September 4th at a public meeting. George feels strongly about advocating for FTD awareness because of his own circuitous diagnosis journey. “It took…
Læs mereAdvancing Hope: AFTD er vært for Industry Advisory Panel
On August 8 and 9, AFTD hosted an industry advisory panel in which a group of people whose lives have been touched by FTD shared their experiences and perspectives with companies working on potential FTD treatments. The panel included people diagnosed with FTD, current and former care partners, and biological family members of people with…
Læs mereGæsteindslag: One Woman's Journey – fra at blive diagnosticeret til at forsøge selvmord til at omfavne livet
September is Suicide Prevention Month. Below, Deb Jobe, a member of AFTD’s Persons with FTD Advisory Council, courageously shares the story of her suicide attempt following an FTD diagnosis, and how she returned from wanting to end her life to fully embracing it. As I sit here in my backyard feeling the sun’s warmth, watching…
Læs mere4. oktober 2024: Mød og hilse personligt i Midlothian, VA
Deltag og lær af andre, der forstår FTD-rejsen ved denne personlige AFTD Meet & Greet-begivenhed i Midlothian, Virginia, nær Richmond, arrangeret af AFTD-frivilligen Carrie Edwards. Arrangementet finder sted i Community Room i Midlothian Library (100 Millworks Crossing). Svar til denne begivenhed ved at sende en e-mail til cae.aftd@gmail.com. Du kan også downloade...
Læs mereAFTD Webinar: Care Partner Learning Series — Navigerende adfærdsvariant FTD-symptomer
Adfærdsvariant FTD, eller bvFTD, udgør næsten halvdelen af alle FTD-diagnoser. Adfærdssymptomer kan fundamentalt ændre ens personlighed, hvilket kan være ekstremt belastende for den diagnosticerede person og udfordrende for plejepartnere, familiemedlemmer og venner. Så at lære om og forstå disse symptomer kan hjælpe plejepartnere med at nærme sig adfærd og støtte personen...
Læs mereMedical Technology CEO diskuterer brug af EEG til at differentiere FTD og Alzheimers
I et interview med Neurology Live deler Advanced Brain Monitoring CEO Chris Berka indsigt fra et pilotstudie, der fandt ud af, hvordan elektroencefalografi (EEG) kan bruges til at skelne mellem FTD, Alzheimers sygdom og Lewy body demens (LBD). Berka var en af mange oplægsholdere ved Alzheimers Association International Conference i 2024, hvis arbejde indeholdt FTD. I…
Læs mereLong Island Alzheimers & Demens Center Family Caregiver Appreciation Day
AFTD-ambassadør Jackie Shapiro vil være vært for et informationsbord ved 2024 Long Island Alzheimer's & Dementia Center Family Caregiver Appreciation Day lørdag den 26. oktober fra 11:30 – 14:30 ET. Dette støttende og informative program tilbyder ressourcer og forståelse til omsorgspartnere for mennesker med FTD og andre demenssygdomme og byder på udstillere og talere...
Læs mereEn samtale med Juan Chavez, MD, fra Passage Bio
AFTD talte for nylig med Passage Bio Vice President for Clinical Development Juan Chavez, MD, om virksomhedens arbejde med at udvikle en terapi, der adresserer FTD. Her fortæller Dr. Chavez, hvor han finder opmuntring om nutidens forskningslandskab, og hvordan FTD-samfundet kan samles for at fremme terapeutisk udvikling. Hvilken tilgang bruger din virksomhed til at...
Læs mere
Danish 
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Polish 
Spanish (Spain)