Første deltager behandlet i AviadoBio fase 1/2 klinisk forsøg til FTD-GRN genterapi
AviadoBio annoncerede den 15. april, at den første deltager er blevet behandlet i deres fase 1/2 ASPIRE-FTD-forsøg, der evaluerer genterapien AVB-101 som en intervention for FTD-GRN. "Der er et kritisk behov for nye behandlinger for mennesker, der lever med FTD-GRN," sagde AviadoBios overlæge David Cooper, MD. "Manglen på effektive sygdomsmodificerende behandlinger ...
Læs mereAFTD's 2024 Driving Hope Golf Tournament (CO)
Hjælp med at støtte AFTDs mission, kom i 18 hullers golf på en eksklusiv bane, og spred FTD-bevidsthed ved at deltage i AFTDs 2024 Driving Hope Golf Tournament den 11. august på Colorado National Golf Club i Erie, CO! Billetter er tilgængelige for enlige golfspillere, foursomes og kun gæster til middag/drinks. Der er også flere sponsormuligheder...
Læs mereAFTD's 2024 Driving Hope Golf Tournament (NY)
Hjælp med at støtte AFTDs mission, kom i 18 hullers golf på en eksklusiv privat bane, deltag i en tennisturnering og spred FTD-bevidsthed ved at deltage i AFTDs 2024 Driving Hope Golf Tournament den 16. september på Metropolis Golf Club i White Plains, NY! Billetter er tilgængelige for enlige golfspillere, foursomes og kun receptionsgæster.…
Læs mereTips og råd: Roaming vs. Vandring
In FTD, “roaming” refers to a form of compulsive behavior that presents as walking, biking, or driving the same route repeatedly. While their lengths may vary, the distance of these compulsively traveled routes can be significant. Roaming isn’t to be confused with “wandering,” a behavior more common in Alzheimer’s disease. Wandering occurs when someone with…
Læs mereIkke alle former for PPA er FTD, som de seneste højprofilerede sagspunkter
Not all forms of primary progressive aphasia (PPA) are caused by the same disease pathology with logopenic variant PPA (lvPPA) capable of being associated with either FTD or Alzheimer’s disease. This distinction was recently highlighted by the journey of lauded playwright Christopher Durang, who passed away from complications of lvPPA on April 2. Durang made…
Læs mere22. maj 2024: In-Person Meet & Greet i Bristol, Pa.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Margaret R. Grundy Memorial Library in Bristol, Pa., located at 680 Radcliffe Street. RSVP by filling out this form. The event will take place on Wednesday, May 22, from 6:00 to 7:30 p.m. Download this…
Læs mereBristol, Pa. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Margaret R. Grundy Memorial Library in Bristol, Penn., located at 680 Radcliffe Street. RSVP by filling out this form. You can also download this flyer to learn more.
Læs mereUnidos en el camino: reunión de personas konfronterende la demencia frontotemporal
Únase y aprenda de otras personas que entienden y han vivido el camino difícil de la DFT (degeneración frontotemporal) en este evento virtual para personas de todas partes de los EE. UU. Este evento es específicamente para personas hispanohablantes y las dificultades que la comunidad latina pueda encontrar en bestemt aquí en este país. Les…
Læs mereAFTD-ambassadør hædrer datteren ved at sprede FTD-bevidsthed: "FTD vandt ikke til sidst"
In a recent interview with WTHI AFTD Ambassador Dawn Kirby recently shared her daughter’s FTD journey with WTHI-TV in Terre Haute, Ind., explaining how she turned her family’s pain into purpose by spreading awareness of the disease. While FTD is the most common dementia in people under 60, Kirby’s daughter Kara began to experience symptoms…
Læs mereDrevet af Forbindelser Ældre Voksen Måned Ressource Fair
AFTD Volunteer Ric Fischer vil være vært for et informationsbord på Powered by Connections Older Adult Month Resource Fair i Fairfax, Va. den 22. maj. Dette er en gratis begivenhed for samfundet for at samle ressourcer og høre paneldiskussioner og talere, der hylder ældre amerikanere. Tilmelding er nødvendig. Klik her for at lære mere og for at...
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