The Power of Advocacy
AFTD would like to highlight the power of advocacy in contributing to the greater awareness of FTD. This year’s World FTD Awareness Week was filled with contributions large and small by advocates who took their time to create awareness and fundraising events, who posted about FTD and AFTD on social media, and who worked with their legislators…
Læs mereDear HelpLine: Medication and FTD
Dear HelpLine, My mom has FTD and we have an upcoming appointment with her physician. We’d like to talk about medications to help with some of her symptoms. What should we know about medication and FTD? While there are currently no medications available that can slow or stop FTD’s progression, some drugs can be prescribed…
Læs merePsilera Announces Positive Preclinical Data for FTD Intervention Candidate
Biotechnology company Psilera announced positive preclinical data for its FTD drug candidate, moving it another step towards first-in-human studies. The company also underscored promising data from efficacy studies conducted by the University of South Florida (USF). The drug, a compound called PSIL-006, is a psilocybin derivative that has a safe, non-hallucinogenic profile, making it a…
Læs mereAFTD Care Partner Learning Series Webinar: Navigating Behavioral Variant FTD Symptoms
Behavioral variant FTD, or bvFTD, makes up almost half of all FTD diagnoses. Behavioral symptoms can fundamentally alter one’s personality, which can be extremely distressing for the person diagnosed and challenging for care partners, family members, and friends. Learning about and understanding these symptoms can help care partners approach behaviors and support the person with…
Læs mereBeskyttet: A Conversation with Alector’s Vice President of Clinical Development
Der er intet uddrag, da dette er et beskyttet indlæg.
Læs mereIn-Person Meet & Greet in Danville, CA
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by AFTD volunteer Judy Price. RSVP for this event by emailing judyaprice1@icloud.com. To learn more, download this flyer.
Læs mereIn-Person Meet & Greet in Fairmont, WV
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by Debbie Elkins, AFTD Ambassador for West Virginia. RSVP for this event by emailing delkins@theaftd.org. To learn more, download this flyer.
Læs mereGæsteindslag: "Ja, og..." af Catherine Savini
Navigating the symptoms of FTD can be difficult for loved ones, especially when someone living with the disease experiences memory-related challenges. However, as Catherine Savini shares, meeting symptoms with “yes, and” instead of “no, because” can turn encounters with frustration and isolation into meaningful moments of playfulness and connection. Recently, a close friend was telling me a…
Læs mereWhen One Voice Sounds Like a Chorus: Dawn Kirbys nådesløse kampagne for at øge FTD-bevidstheden
Dawn Kirby and her husband, Tim, are getting the word out about FTD. The couple were recently featured in an article in the Prairie Press (Paris, Ill.), where they talked about their advocacy on behalf of FTD awareness. Dawn and Tim have fond memories of watching their daughter, Kara Ike, come into her own in…
Læs mere26. oktober 2024: In-Person Meet & Greet i Middletown, DE
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Jeanne Cestone, taking place from 10:30-11:30 a.m. on Saturday, October 26, 2024. The event will be held at the Appoquinimink Community Library in Middletown, Del. (204 E. Main Street). RSVP for this event…
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