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On March 5, AFTD hosted a virtual Externally Led Patient-Focused Drug Development (EL-PFDD) meeting with representatives of the U.S. Food and Drug Administration. We’re grateful to the hundreds of people and families from around the world who participated in this important opportunity to make the FDA aware of the urgent need for FTD treatments.

We encourage all whose lives have been impacted by FTD to submi a post-meeting comment via our EL-PFDD meeting page. A video archive of the full meeting will be available soon!