Coolmud lancering
Sisters Linnea and Erika Lehmkuhl are launching their project “Coolmud” in honor of their father, Jack, with a special pre-order taking place December 3rd through the 15th. After Jack was diagnosed with FTD in 2022 (having shown symptoms since 2015), his family knew he needed a creative outlet to express his “new language”, so they…
Læs mereGiv hjælp og håb denne #Giving tirsdag
Michele Howerter, whose mom Nancy is living with primary progressive aphasia, is sharing her family’s story for Giving Tuesday – a day to recognize and support mission-focused organizations worldwide. AFTD will once again participate in this annual campaign to raise awareness of FTD and funds to drive our work on behalf of all facing this…
Læs mereAdvancing Hope: Sponsorerede testprogrammer; muligheder for gratis genetisk testning
Once you have chosen to pursue genetic testing, it can be frustrating to learn that the cost is too high, or insurance will not cover genetic testing. Sponsored testing programs (STPs) provide the opportunity to access genetic testing at no-cost, removing financial barriers and enabling greater access to genetic counseling and testing. STPs are collaborations…
Læs mereFerrer Doser Første deltager i fase 2-studie til PSP-behandling
Pharmaceutical company Ferrer announced that it has dosed the first participant in the PROSPER phase 2 clinical trial for an experimental treatment for progressive supranuclear palsy. The ongoing trial seeks to evaluate the safety and efficacy of the drug FNP-223, which is designed to slow the progression of the disease. The drug works to prevent…
Læs merePersoner med FTD Advisory Council Specialartikel: Holiday Madness
This article was written by a person with FTD to highlight the challenges of dealing with the holidays with an FTD diagnosis. AFTD hopes care partners and those diagnosed can benefit from the perspective presented here. By Cindy Odell, former Council member All holidays can be stressful for anyone at any time. It doesn’t matter…
Læs mereAlt i familien for at afslutte FTD: Colonial Electric's Food for Thought-begivenhed rydder mere end $1 million siden starten
AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD for nearly 30 years. Since Steve’s initial Colonial Electric Food for Thought gathering in 2014, the event, which features a nine-hole golf tournament, cocktail hour,…
Læs mereEn samtale med en neurolog hos Denali Therapeutics
Recently, AFTD had a conversation with members of the Denali Therapeutics team, including Dr. Richard Tsai, to provide insights into their work to develop a therapeutic with Takeda to treat FTD-GRN (frontotemporal dementia caused by GRN gene mutations). Dr. Tsai is a neurologist at Denali where he partners with other scientists to design and conduct…
Læs mereTakket være AFTD-ambassadørens generøsitet modtager californiere afgørende økonomisk hjælp
Terry Walter, an AFTD Ambassador in California and Nevada, has been a force for positive change and support since 2008, when she began volunteering for AFTD. Over the years she has organized golf tournaments, convened people affected by FTD through her Meet & Greet events, and raised funds for AFTD’s mission with her annual Food…
Læs mereBeskyttet: A Conversation with a Neurologist at Denali Therapeutics
Der er intet uddrag, da dette er et beskyttet indlæg.
Læs mereAFTD Care Partner Learning Series Webinar: Naviger i ferien med en FTD-diagnose
The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences. In this webinar, AFTD HelpLine Manager Stephanie Quigley leads a discussion with members of AFTD’s Persons with FTD Advisory Council as they share ideas and…
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