Coolmud Launch

Sisters Linnea and Erika Lehmkuhl are launching their project “Coolmud” in honor of their father, Jack, with a special pre-order taking place December 3rd through the 8th. After Jack was diagnosed with FTD in 2022 (having shown symptoms since 2015), his family knew he needed a creative outlet to express his “new language”, so they…

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Giv hjælp og håb denne #Giving tirsdag

Michele Howerter, whose mom Nancy is living with primary progressive aphasia, is sharing her family’s story for Giving Tuesday – a day to recognize and support mission-focused organizations worldwide. AFTD will once again participate in this annual campaign to raise awareness of FTD and funds to drive our work on behalf of all facing this…

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Ferrer Doser Første deltager i fase 2-studie til PSP-behandling

Text: Ferrer Doses First Participant in Phase 2 Study for PSP Treatment. Background: A person pours pills into another person's hand.

Pharmaceutical company Ferrer announced that it has dosed the first participant in the PROSPER phase 2 clinical trial for an experimental treatment for progressive supranuclear palsy. The ongoing trial seeks to evaluate the safety and efficacy of the drug FNP-223, which is designed to slow the progression of the disease. The drug works to prevent…

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Personer med FTD Advisory Council Specialartikel: Holiday Madness

Persons with FTD Advisory Council Special Article: Holiday Madness Photo of Cindy Odell smiling and wearing a gray, charcoal, black, red, and burgundy sweater.

This article was written by a person with FTD to highlight the challenges of dealing with the holidays with an FTD diagnosis. AFTD hopes care partners and those diagnosed can benefit from the perspective presented here. By Cindy Odell, former Council member All holidays can be stressful for anyone at any time. It doesn’t matter…

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Alt i familien for at afslutte FTD: Colonial Electric's Food for Thought-begivenhed rydder mere end $1 million siden starten

Patricia "Trish" Bellwoar, who had FTD, smiles as she sits in a wheelchair being pushed by her husband, Joseph Bellwoar.

AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD for nearly 30 years. Since Steve’s initial Colonial Electric Food for Thought gathering in 2014, the event, which features a nine-hole golf tournament, cocktail hour,…

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En samtale med en neurolog hos Denali Therapeutics

Graphic: A Conversation with a Neurologist at Denali Therapeutics. Background: A photo of Dr. Richard Tsai

Recently, AFTD had a conversation with members of the Denali Therapeutics team, including Dr. Richard Tsai, to provide insights into their work to develop a therapeutic with Takeda to treat FTD-GRN (frontotemporal dementia caused by GRN gene mutations). Dr. Tsai is a neurologist at Denali where he partners with other scientists to design and conduct…

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