Advancing Hope: AFTD deltager i AAIC 2024.
Debra Niehoff, Kim Jenny, and Shana Dodge from AFTD and Sweatha Reddy from the FTD Disorders Registry attended the Alzheimer’s Association International Conference (AAIC), which took place in Philadelphia starting July 26, 2024. AAIC welcomed more than 9,000 attendees from 93 countries and included sessions and posters on the science of Alzheimer’s Disease and related…
Læs mereDen levede oplevelse af FTD: At lære personerne med FTD at kende: Deb Jobe
Formally chartered in 2020, the Persons with FTD Advisory Council works to ensure that the insights and perspectives of people living with FTD are included in the development of AFTD’s policies, programs, and services. The stories of members like Deb Jobe, who joined the council recently, help illustrate what FTD is truly like to challenge…
Læs mereUK Man diskuterer FTD Caregiving med BBC og Yahoo! Liv
An FTD caregiver in the United Kingdom spoke about the disease’s emotional and financial impact in recent interviews with the BBC and Yahoo! Life. Gareth Heslop, of Sheffield, UK, said that being a care partner for his long-time partner and fiancée, Sarah Frith, has put a “huge strain on the family.” And like so many…
Læs mereAviado Bio CMO diskuterer ASPIRE-FTD klinisk forsøg med Neurology Live
In a recent interview with Neurology Live, Aviado Bio chief medical officer David Cooper, MD, discussed the company’s Phase 1/2 ASPIRE-FTD trial. Dr. Cooper shared how the company’s AVB-101 gene therapy worked, and he outlined what criteria the study would need to meet to be successful. The ASPIRE-FTD trial is focused on treating a specific…
Læs mereAdvocacy Update: FTD Awareness Week
With FTD Awareness Week quickly approaching, we asked AFTD advocates to help us obtain a resolution or proclamation in every state, and the community has definitely risen to the occasion. Thanks to our advocates, we have a proclamation and/or resolution recognizing FTD Awareness Week in 9 states, with another 18 states not far behind. FTD…
Læs mere2024 Fundraiser for AFTD, arrangeret af Garys FUB Team
Join Gary’s FUB Team on September 23, 2024 from 5:00pm-8:30pm at the Hutton House in Medicine Lake, MN for the 2024 Fundraiser for AFTD! The evening promises to be filled with inspiring moments, including guest speaker Dr. David Knopman, a leading dementia researcher from the Mayo Clinic, and heartfelt testimonies from local caregivers. Enjoy live…
Læs mereAFTD Brand Influencer diskuterer forpligtelse til omsorg
AFTD Brand Influencer Nicole Petrie shared her family’s FTD journey with host Lisa Opie on the podcast Miss Represented earlier this year. Petrie is a model, activist, and entrepreneur, and while she is proud of all her roles, the one she takes most seriously is being a care partner for her mother, Cheryl, who was…
Læs mereStudiet undersøger forekomsten af FTD og andre unge demenssygdomme i Italien
A study published in the journal Diagnosis, Assessment & Disease Monitoring investigates the incidence of neurodegenerative young-onset dementias (YODs) like FTD in the Brescia province of Italy. As highlighted by the authors of the study, the focus of most services for persons affected by dementia are tailored to the needs of older people and are…
Læs mereAFTD-ambassadør deler sin historie på podcasten "All Home Care Matters".
AFTD Ambassador Debbie Elkins and AFTD Support and Education Director Esther Kane, MSN, RN-CDP, appeared on the podcast All Home Care Matters in July to discuss the changed nature of relationships following an FTD diagnosis, anticipatory grief, and dementia’s social stigma. A registered nurse, Elkins may seem as if she is better able to handle…
Læs mereInteraktivt kort forenkler søgning efter hjælp på ny AFTD "Find support"-side
AFTD har netop lanceret en ny side designet til at forenkle din søgning efter svar. Vi tilføjede en FTD Support Group og Diagnostic Center Locator, som inkluderer et kort, der giver dig mulighed for at søge hvor som helst i USA, og klikbare ikoner afslører detaljerne for hver placering. Det interaktive kort viser: Supportgrupper (lokale, regionale,...
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