Posts by Mike Mooney
AFTD Partners with ALS Association to Support Advancing Digital Tools
Although FTD and amyotrophic lateral sclerosis (ALS) have long been considered distinct disorders, experts now recognize that the two disorders have much in common. Both can be caused by a…
Read MoreGuest Feature: Finding Support and Understanding on the Go with the Hidden Disabilities Sunflower
For persons diagnosed with FTD, simply existing in public can be challenging. FTD’s symptoms can cause difficulties while shopping, ordering food, or participating in social activities. Traveling – with its…
Read MoreDementia Advocate with FTD Shares Her Perspective on Losing Her Driver’s License
In a blog article published by the Older Persons Advocacy Network of Australia, dementia advocate Gwenda Darling shares her perspective on losing her driver’s license due to her FTD diagnosis.…
Read MoreFTD Care Partner Shares Memories of Her Mother on TikTok
In an interview with Newsweek, FTD care partner Channing Clifford shares her favorite memories with her mother, Valerie, who was diagnosed with FTD last year. Roughly 10 years ago, Valerie…
Read MoreThe Lived Experience of FTD: Driving and FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council work to share the insights of persons diagnosed to help guide AFTD on…
Read MoreLink Between TAF15 Protein and FTD Discovered in UK Study
In a study published in the scientific journal Nature, researchers in the United Kingdom discovered that a previously known protein may play a role in the development of an FTD…
Read MoreDear HelpLine: Looking for Support Options
Dear HelpLine, Our family is looking for ways to connect with other FTD care partners for support. What options are available? A core part of AFTD’s mission is to help…
Read MoreHigh-Profile FTD Diagnoses Boost Public Awareness, AFTD Ambassador Says
In a March 1 interview with the Rochester, Minn.-based station KAAL-TV, AFTD Ambassador Deb Scharper noted that the public announcements of the FTD diagnoses of Wendy Williams and Bruce Willis…
Read MoreAdvocacy Update: Rare Disease Day and FTD
Rare Disease Day, which occurs annually on the last day of February, was established by the European Organization for Rare Diseases and first observed on February 29, 2008. Rare Disease…
Read MoreMagazine Editor Shares Legacy of Beloved Seattle Music Promoter Diagnosed with FTD
In an interview with NPR, Charles R. Cross, former editor of the music magazine The Rocket, shared the legacy of Seattle music promoter Susie Tennant, who died in January after…
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