Posts by Mike Mooney
Advancing Hope: 2020 AFTD Pilot Grant Recipients Announced
AFTD Pilot Grants – our longest-running funding program – provide critical support to early-career investigators and encourage them to become lasting contributors to FTD research. Despite the challenges imposed by…
Read MoreJanuary’s Athlete of the Month: Pam McReynolds
January’s athlete of the month is AFTD-Team member Pam McReynolds from Tennessee. Pam joined us on Charity Miles last July, and has since logged over 1,000 miles by walking in…
Read MoreDecember’s Volunteer of the Month: Kathy LaFone
December’s volunteer of the month is Kathy LaFone. Kathy, from North Carolina, volunteers out of a “crazy little thing called love” for her late husband, Tim, who had FTD. “I…
Read MoreWords of Encouragement: Holding onto Memories of Mom
by Amy Shillady The COVID-19 pandemic has inflicted tremendous loss. Some people have missed out on long-anticipated vacations or wedding ceremonies, and some have even lost jobs or homes. Thousands upon…
Read MoreDecember’s Athlete of the Month: Amy Pohl
December’s athlete of the month is Amy Pohl. Amy is dedicated to using the Charity Miles app, and has walked, run, and biked over 520 miles, accompanied by her husband,…
Read MoreNovember’s Athlete of the Month: Steve Smith
This November, we would like to name Steve Smith from Minnesota athlete of the month for supporting AFTD’s mission through Charity Miles! Steve has completed over 570 miles by checking…
Read MoreNovember’s Volunteer of the Month: Al Papesh
November’s volunteer of the month is Al Papesh. In the Fall of 2015, Al attended an AFTD Meet & Greet in Des Moines, Iowa. Prior to that meeting, Al thought…
Read MoreWords of Encouragement: Finding & Fostering Joy with FTD
by Whitney Ludvik In June 2016, three years after moving away from my hometown of Richmond, Virginia, I got a call from one of my mom’s best friends. She had…
Read MoreOctober’s Volunteer of the Month: Kathy Urban
October’s volunteer of the month is Kathy Urban. Kathy’s mom was diagnosed with bvFTD in 2009, and the journey that followed left Kathy feeling alone and overwhelmed. Shortly after her…
Read MoreWords of Encouragement: A Daughter’s Mission of Love
by Christina Kamarauskas The months and years leading up to my dad’s bvFTD diagnosis in February 2019 were chaotic and confusing. Once a likeable and dependent man of pride and strength,…
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