Posts by Mike Mooney
University of Sydney Creates Online PPA Diagnostic Tool for Clinicians
Researchers at the University of Sydney have created a free online diagnostic tool to assist clinicians in identifying primary progressive aphasia and its variants. The web-based “calculator” is modeled…
Read MoreAustralian Reporter Shares Mother’s Experiences After PSP Diagnosis
Stephanie Boltje, a reporter for the Australian news program The Drum, shared her family’s experiences after her mother Ronda was diagnosed with progressive supranuclear palsy. The first signs that Ronda…
Read MoreIn-Progress Clinical Trial Evaluating Speech Therapy for People with PPA
The Communications Bridge 2 clinical trial is currently evaluating whether a specially developed speech therapy regimen could help mitigate communications difficulties for people with primary progressive aphasia more effectively than…
Read MoreNew Study Highlights Tradeoff Between Grammar and Word Choice in People with PPA
A study published in the medical journal Proceedings of the National Academy of Sciences revealed some ways that the people living with primary progressive aphasia compensate for certain communication difficulties. …
Read MorePassage Bio Issues First Dose in FTD Gene Therapy Trial
Passage Bio, a company that specializes in developing genetic therapies, administered the first dose in a clinical trial evaluating a potential treatment for people diagnosed with frontotemporal degeneration associated with…
Read MoreTony-Winning Broadway Playwright Diagnosed with lvPPA
Christopher Durang, a playwright renowned for his absurdist and comedic writing style, has quietly backed away from producing plays after receiving a diagnosis of logopenic variant primary progressive aphasia (lvPPA). …
Read MoreFebruary’s Athlete of the Month Maggie Sepesy
AFTD’s February Athlete of the Month is Maggie Sepesy from New York. Maggie uses the Charity Miles app to track her mileage as she runs in memory of her mom…
Read MoreHelp & Support: Social Security Benefits for People Living with FTD
As a young-onset form of dementia that typically strikes during the prime earning years, FTD often has a significant impact on a family’s financial situation. Through a combination of loss…
Read MoreFebruary’s Volunteer of the Month Steven McLain
When Stephanie McLain’s mom was diagnosed with FTD, her family went in search of information and resources to help them understand the disease and better navigate the FTD journey. It…
Read MoreJanuary’s Volunteer of the Month Barbara Hays
When Barbara’s husband was diagnosed with bvFTD in 2016, the two years that followed were the most difficult and isolating of her life. In 2018, Barbara sought support at AFTD’s…
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