Posts by Mike Mooney
Words of Encouragement: Living Out Loud
by Amy Johnson Nine months ago I laid my husband Mark to rest after our five-year journey with bvFTD. While I am typically a very private person, our experience with…
Read MoreJanuary’s Athlete of the Month: Kathy Peetz
AFTD’s January Athlete of the Month, Kathy Peetz from Wisconsin, tracks her daily walks and jogs using the Charity Miles app, and shares her activity on Twitter to inspire others…
Read MoreHelp & Support: Coping with the Stress of FTD
The FTD journey can be lonely and isolating. Whether you are caring for a person diagnosed or are living with an FTD diagnosis yourself, you are likely facing a set…
Read MoreCommunity Connection: Resolve to Volunteer with AFTD
With the new year right around the corner, we invite you to make a difference in the lives of families across the country by resolving to volunteer with AFTD. You…
Read MoreWords of Encouragement: A Season of Giving Back
by Lindsay Gade Boone My dad is the kindest, gentlest man I know. He is truly the epitome of selfless love – always the first in line to help those…
Read MoreDecember’s Athlete of the Month: Bobby Graham
Our December Athlete of the Month is Bobby Graham from Delaware, who participates as a member of the AFTD-Team by using the Charity Miles app. Since downloading the app in…
Read MoreNovember’s Athlete of the Month: Craig Roman
Our November Athlete of the Month is Craig Roman from Illinois, who participates as a member of the AFTD-Team through the Charity Miles app. Since joining the app, Craig has…
Read MoreWords of Encouragement: Making Holiday Memories – Joyful Moments with My Dad
by Christina Kamarauskas My dad was always a guy’s guy, who projected a tough exterior. However, when it came to the holidays, he was a total softie and a kid…
Read MoreAdvancing Hope: AFTD Publishes Landmark Voice of the Patient Report
On March 5th, 2021, we invited our community to participate in an Externally Led Patient-Focused Drug Development (EL-PFDD) meeting focused on FTD. EL-PFDD meetings were established by the FDA to hear…
Read MoreHelp & Support: FTD Genetics and You – The Role of the Genetic Counselor and Genetic Testing
Multiple studies since 2009 have identified that 40 percent or more of FTD cases are known as familial. These cases can reflect a family history of dementia, a major psychiatric condition, or…
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