Posts by Mike Mooney
Help & Support: AFTD Resources for Kids and Teens
Unlike other types of dementia, FTD most often occurs in middle age, when many families have children or teens at home. Families with young children and teens face unique challenges…
Read MoreTips & Advice: Finding Support for Your FTD Journey
Isolation is common for persons diagnosed, care partners, and family members on the FTD journey, as FTD is a disease relatively few people have heard of and even fewer truly…
Read MoreAdvancing Hope: AFTD and Packard Center for ALS Co-Host Innovative Interdisciplinary Workshop
The abnormal accumulation of the protein TDP-43 occurs in both FTD and amyotrophic lateral sclerosis (ALS), suggesting that disruptions in TDP-43 function may be at the heart of both disorders.…
Read MoreAphasia Awareness Month: Resources and Guidance for Managing Primary Progressive Aphasia
June is Aphasia Awareness Month, bringing awareness of language-based disorders to people around the U.S. While many Americans have not heard of aphasia, even fewer know about primary progressive aphasia…
Read MoreAdvocacy Update: AFTD Meets with NY State Senator Michelle Hinchey for FTD Week Announcement
AFTD staff and volunteers traveled to Albany on May 22 to meet with New York State Senator Michelle Hinchey as she recalled Senate Resolution 992 declaring September 24 – October 1…
Read MoreAdvancing Hope: AFTD announces recipients of 2022 Pilot Grants
AFTD Pilot Grants provide critical support for FTD investigators who have completed their training and are in the early stages of establishing an independent research career. Receiving a Pilot Grant…
Read MoreHelp & Support: AFTD Quality of Life Grants Now Provide Better Benefits to People with FTD
AFTD’s Comstock Grant program, which offers modest financial assistance to people with FTD and their care partners, has benefited hundreds of families through its Respite Grants, Travel Grants, and Quality of…
Read MorePeople with Non-English First Language Have Delayed bvFTD Symptom Onset, Study Shows
Researchers at the University of Sydney discovered that Australians born overseas who spoke a first language other than English could tolerate neurodegeneration longer before behavioral variant FTD (bvFTD) symptoms begin…
Read More“I Vowed to Take Care of Him; Then He Filed for Divorce” – Article Shares Woman’s Tumultuous FTD Journey
In a recent article published on the website The Cut, author Katherine Nichols shares the tumultuous FTD journey that followed her husband’s diagnosis. When their relationship began, Nichols and her…
Read MoreIowa Woman Discusses Her Genetic FTD Status in Fox News Interview
Alyssa Nash, a 27-year-old hospital receptionist, shared her experiences on the FTD journey and learning she carries a genetic FTD causing mutation in a May 19 article published by Fox…
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