Posts by Julie Sullivan
“Vogue” Covers AFTD’s 2022 Hope Rising Benefit
(L-R: AFTD CEO Susan L-J Dickinson, AFTD Board member Donald E. Newhouse, Hope Rising Benefit Chair David Zaslav, Hope Rising Host Paula Zahn) AFTD’s 2022 Hope Rising Benefit returned on…
Read More“Die Hard” Actor Bruce Willis Steps Away from Career Following Aphasia Diagnosis
Bruce Willis is stepping away from his acting career after experiencing health issues related to an aphasia diagnosis that is “impacting his cognitive abilities,” his family announced on social media…
Read MoreNational Doctors Day Spotlight On…Joanna Dauber, D.O.
To mark National Doctors Day, we’re spotlighting Joanna Dauber, D.O., a family medicine physician and former FTD caregiver who is diligently working to amplify FTD awareness in the primary care…
Read MoreNovelist Julie Otsuka Shares Mother’s Journey with FTD on “Fresh Air” Podcast
Best-selling novelist Julie Otsuka discussed how her mother’s FTD diagnosis inspired the main character of her new novel The Swimmers in a recent episode of NPR’s Fresh Air podcast. Otsuka…
Read MoreUCL, NIH Study Determines Why Genetic Variant Associated with FTD Worsens Disease Outcome
A recent study led by researchers at the University College London (UCL) and the National Institutes of Health (NIH) has determined why a common genetic variant worsens the disease outcome…
Read MoreWisconsin Couple Impacted by FTD Share Their Love Story in Local Newspaper
Wisconsin couple Joe and Barb Spiegelhoff were featured in a Lake Geneva Regional News article, sharing how they maintain their love following Joe’s diagnosis of primary progressive aphasia (PPA) in…
Read MoreCertified Nurses Day Spotlight On: Sandra Grow, RN, AFTD Board of Directors
To mark National Certified Nurses Day, we’re spotlighting AFTD Board Member Sandra Grow, RN, who has worked to increase FTD awareness amongst healthcare professionals and the general public. For…
Read More“Sports Illustrated” 2022 Swim Search Finalist Raises FTD Awareness in Honor of Mother
Model Nicole Petrie is raising national FTD awareness and using her modeling career to be “a voice for caregivers all over the world” after being named a 2022 Sports Illustrated…
Read MoreSpotlight On…Helen-Ann Comstock, AFTD Founder
To mark International Women’s Day, we’re spotlighting the impactful work of AFTD Founder Helen-Ann Comstock, who created AFTD both to honor her late husband and to support other families impacted…
Read MoreFNIH Announces Neurofilament Project Designed to Improve Diagnostic Process for Familial FTD
The Foundation for the National Institutes of Health (FNIH) Biomarkers Consortium, in partnership with AFTD, recently launched a new project designed for early detection of hereditary forms of FTD and…
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