Posts by Julie Sullivan
COVID-19 and FTD Research: Challenges and Silver Linings
The COVID-19 pandemic has brought significant new challenges for families facing FTD, and it has also brought new obstacles for the scientists seeking to better understand and treat this disease.…
Read MoreMaking a Difference During COVID-19
During these challenging and uncertain times, AFTD is extremely grateful for the steadfast commitment of our volunteers across the country. As the COVID-19 pandemic continues, we know many of our…
Read MoreSpotlight on…Aisha Adkins, FTD Caregiver
Aisha Adkins never thought she would find herself in a caregiver role so early in life, but after her mother, Rose, was diagnosed with FTD, she placed her career on…
Read MoreStudy Reveals How Tau Protein Ensnares Other Chemicals to Form Toxic Tangles
A new study has revealed dozens of previously undiscovered proteins believed to bundle with tau to form toxic, brain-damaging tangles that contribute to FTD and other neurodegenerative disorders. Scientists have…
Read MoreWisconsin Family Shares PPA Journey, Adjusting to COVID-19
Since Wayne Zorn was diagnosed with primary progressive aphasia (PPA) six years ago, he and his wife CeCelia have remained determined to continue the activities that are close and meaningful…
Read MoreTampa Family Highlights Challenges of Adjusting to Restricted Facility Visits During COVID-19
For the Myers family, visiting their father’s care facility was a near daily routine before the onset of COVID-19. But these days, their visitations have been limited to window visits…
Read MoreFTD Caregiving in a Pandemic
Dear Friends, I hope you and your loved ones are staying safe and healthy during this still rather uncertain and stressful time. In my daily work at the Mesulam Center…
Read MoreRevolutionary Computer Scientist Russell Kirsch Dies After Journey with FTD
Russell Kirsch, a computer scientist known for scanning the first digital image, has died after a nearly two-decade long journey with FTD. Considered the inventor of the digital pixel, Kirsch…
Read MoreStudy of Brain Scans Suggest Potential Biomarkers in Cases of Familial FTD
Researchers hoping to better understand what happens in the brain before people with familial FTD develop symptoms have identified a potential biomarker to detect changes that could help indicate disease…
Read MoreMother Impacted by FTD Writes Children’s Book About Dementia
A mother of three whose father is living with FTD has launched pre-sales of a children’s book she wrote to help kids understand dementia, a portion of whose sales will…
Read More