Posts by Julie Sullivan
AFTD Senior Director of Scientific Initiatives Discusses FTD and ALS at 2022 Target ALS Annual Meeting
AFTD Senior Director of Scientific Initiatives Penny Dacks, PhD, discussed the overlapping disease pathology between ALS and FTD during an interview conducted at the 2022 Target ALS Annual Meeting, held…
Read MoreALS Awareness Month: Understanding an ALS with FTD Diagnosis
May is ALS Awareness Month, a time to raise awareness about amyotrophic lateral sclerosis (ALS), and during this month, AFTD is raising awareness around an ALS with FTD diagnosis. ALS…
Read MoreModel Discusses FTD Advocacy in “Sports Illustrated” Article
Model and FTD caregiver Nicole Petrie discussed why she’s spreading FTD awareness in a recent Sports Illustrated article. “I have dreamed of shooting for [Sports Illustrated] since I started modeling,…
Read MoreFTD Insights Survey Data Presented at Latinos & Alzheimer’s Symposium
FTD data focused on the perspectives of Latino Americans living with and impacted by FTD was presented at the third Latinos & Alzheimer’s Symposium. FTD Disorders Registry Director Dianna Wheaton,…
Read MoreLittle-Known Protein May Play a Role in FTD Disease Pathology, Study Suggests
Researchers at the University of California, Los Angeles (UCLA) are gaining new insight into how the transmembrane protein 106B, or TMEM106B, plays a role in FTD disease pathology. In a…
Read More“Simulation House” Lets Iowans Experience What It’s Like to Live with Dementia
The University of Northern Iowa (UNI) and the Northeast Iowa Area Agency on Aging have teamed up to create a dementia simulation house to educate people on what it’s like…
Read MoreCouples Living with PPA Featured in Wisconsin Newspaper
Two couples living with primary progressive aphasia (PPA) share their experiences of managing the disease and the importance of supportive relationships in a recent article in the Wisconsin newspaper the…
Read MoreMovement Symptoms Associated with FTD Correlate with Greater Brainstem Atrophy, Study Finds
Persons diagnosed with FTD who exhibit extrapyramidal symptoms are likely to have significantly more brainstem atrophy and reduced metabolism in certain brain areas compared with persons diagnosed who don’t exhibit…
Read MoreActivist Living with FTD Discusses Dementia Advocacy in Asia in “Being Patient” Interview
Emily Ong, who lives with FTD, discussed her efforts to combat the challenges of dementia advocacy in Asia in an April 20 Being Patient “LiveTalk” interview. Ong, who lives in…
Read MoreNational Minority Health Month Spotlight On…Abrar Tanveer, AFTD Volunteer
April is National Minority Health Month, a time to raise awareness about health disparities that continue to affect people from racial and ethnic minority groups, and to encourage action – both…
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