Posts by Gwen Gainer
Prominent Utah Economist Donates Brain to FTD Research
Before he died of FTD earlier this year, influential economist Jeff Thredgold of Utah pledged to donate his brain to help advance our understanding of the disease. On August 4,…
Read MoreNew York Publication Tells Rep. Hinchey’s FTD Story
Earlier this summer, the family of Maurice Hinchey announced that the former Congressman from New York has been living with the primary progressive aphasia variant of FTD, “gradually and insidiously…
Read MoreAFTD Quality of Life Grants
AFTD will pilot a new Quality of Life grant for persons diagnosed with an FTD disorder as part of the Comstock Grant Program. This grant helps persons diagnosed offset the…
Read MoreAFTD Requests for Proposals (RFPs) for the 2017 Pilot Grant Program
AFTD is pleased to announce two Requests for Proposals (RFPs) for the 2017 Pilot Grant program, which provides seed funding for innovative FTD research by early-career investigators. The Basic Science Research…
Read More“Hang It to Cure FTD”
Sharon and Rod Hall of Georgia are creating an FTD focused calendar for 2018, titled:Â Celebrating Life with Family, Friends and Fun. The calendar will feature pictures of people diagnosed with…
Read MoreSacramento City Council Member Dies of PPA
Bonnie Pannell, who served on Sacramento’s city council for 16 years, died on June 27 from the effects of primary progressive aphasia. Pannell, who was 68, stepped down from her…
Read MoreHinchey Family Announces that Former Congressman Maurice D. Hinchey Has Been Diagnosed with FTD
The family of former New York Congressman Maurice D. Hinchey has announced that he has the primary progressive aphasia variant of FTD. Hinchey’s PPA symptoms began as the occasional lost word,…
Read MoreRadio Segment Explores FTD’s Effect on One Father-Daughter Relationship
FTD took the ability to speak clearly from Arpiar Saunders, better known as Arpy. Leading up to his death in late 2014, Arpy was left with the ability to say just a…
Read MoreCookbook Author Donating a Portion of Sales to AFTD
Starting in 1960, Adrienne Zausner began to travel frequently to Europe in search of the continent’s most delicious meals, befriending chefs and learning their recipes along the way. After Adrienne…
Read MoreWorkbook for Caregivers = Donations to AFTD
Robin Albright wrote and illustrated “12 Tiny Well-being Tips for Caregivers” to help caregivers take care of themselves, so that they can take care of others. The interactive book not…
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