Impact Report Web Header 2024

Donors

We are grateful to everyone who chooses to make a gift in support of AFTD’s mission. Our generous donors enable us to support people living with FTD, drive innovative research, educate healthcare professionals, increase awareness worldwide, and advocate for all affected by this disease.

Donors named gave $1,000 or more in AFTD’s fiscal year ending June 30, 2024.

$1,000,000+

  • The David Geffen Foundation

$100,000-$999,999

  • Ms. Kristin Holloway
  • Samuel I. Newhouse Foundation Inc.
  • Bank of America
  • Kissick Family Foundation
  • Judy & Leonard Lauder
  • George L. Ohrstrom, Jr. Foundation
  • Open Hand Foundation
  • The David E. Reese Family Foundation
  • Mrs. Nan G. Swid
  • The Mike and Beth Walter Family
  • Warner Bros. Discovery

$50,000-$99,999

  • Alector
  • Mr. & Mrs. Alan Berlin
  • The Farley Pierre LaCroix Chang Gang
  • Charter Communications
  • Citi
  • Colonial Electric Supply
  • Mr. & Mrs. Victor Ganzi
  • Passage Bio, Inc.
  • Paul, Weiss, Rifkind, Wharton & Garrison LLP
  • Prevail Therapeutics, a wholly owned subsidiary of Eli Lilly
  • Takeda Pharmaceuticals Company
  • UCB Biopharma
  • William Randolph Hearst Foundation

$20,000-$49,999

  • Mr. & Mrs. Kirk Adamson
  • Alexion Pharmaceuticals
  • Anonymous
  • Kathi & Peter Arnow
  • AviadoBio
  • Mrs. Kathy Balazs
  • Batty Family Fund
  • Bloomberg Philanthropies
  • Christie’s
  • Denali Therapeutics
  • Dentons US LLP
  • The Margo Fowler Family Foundation
  • Goldman Sachs Private Wealth Management - James Herring & John Gaffney
  • Houlihan Lokey
  • Mr. David A. Hutchison
  • Jackson Lewis P.C.
  • Ramona M. Kohlmann
  • Mrs. Lindy Kowsky
  • Mrs. Susan Laden
  • Dalia and Larry Leeds Family Foundation
  • Carol Sutton Lewis & William M. Lewis, Jr.
  • Mr. & Mrs. Philip Lovett
  • Mary Beth Repasy Fund for Progressive Supranuclear Palsy Research of The Dayton Foundation
  • McDermott Will & Emery LLP
  • Dr. & Mrs. Joseph Mele
  • Milburn Foundation
  • Mr. Donald Newhouse
  • Ms. Lisa Boyce and Mr. Kevin O’Neill
  • RBC Capital Markets
  • Mr. & Mrs. Albert Rodriguez
  • The Edward John and Patricia Rosenwald Foundation
  • Mr. & Mrs. Stephen Selby
  • Shearman & Sterling LLP
  • Mrs. Bonnie B. Shepherd
  • Skadden, Arps, Slate, Meagher, & Flom LLP
  • Sydney Licht & Tom Summer
  • The Connecticut Frontotemporal Dementia Foundation, Inc.
  • The Durst Organization
  • Vesper Bio
  • Mrs. Emma Heming Willis
  • Ms. Betty Woods
Channing

“Any time I have knowledge of what to do next, it’s because of AFTD. It’s empowering to know that this organization not only offers support for the tough parts of this diagnosis but also communicates with people affected.”

Channing Clifford (right), current care partner to her mom, Valerie. Channing connects with other care partners and raises awareness by sharing her family’s journey on TikTok

$10,000-$19,999

  • Ms. Gail Andersen
  • Anonymous
  • Mr. & Mrs. Benjamin Arnow
  • Mr. & Mrs. Joel Arnow
  • Mr. & Mrs. Ted M. Beal
  • Mr. Timothy L. Broer
  • Corient
  • Dementia Society of America
  • Richard K. & Jennie L. DeScherer
  • Bruce Dixon
  • East Bay Community Foundation
  • Evercore
  • Florence V. Burden Foundation at the recommendation of Foundation Director and Family Member, Frederick Childs and his daughter, Elizabeth Childs
  • Mr. Michael Fricklas & Dr. Donna Astion
  • Fried, Frank, Harris, Shriver, and Jacobson LLP
  • Genentech
  • The Goldman Family
  • Lee and Jill Goldman Donor-Advised Fund
  • Goldman Sachs & Co. - Aaron Siegel
  • Allen and Lola Goldring Foundation
  • Mrs. Clare T. Hall
  • Mrs. Sandra Harrison
  • Mr. & Mrs. Tim Harrison
  • Hauber Foundation
  • Hebrew Home
  • JLL
  • JPMorgan Chase & Co.
  • Elise & Oren Klein
  • KPMG LLP
  • Ms. Vivien MacLetchie
  • Kim Madey
  • Joseph Magliocco
  • Marsh & Mercer
  • Ms. Anne Marston
  • Tobias Meyer & Mark Fletcher
  • Mr. & Mrs. Robert J. Miron
  • Jon Monson
  • NEPC, LLC
  • Mr. & Mrs. Andrew W. Newhouse
  • Orchard Therapeutics
  • Mr. Joseph Pizzurro
  • Anh-Tuyet Nguyen & Robert Pollock
  • PWC LLP
  • QurAlis
  • Sharon & Daniel Roitman
  • Ropes & Gray
  • Ms. Elaine Rose
  • Service Family Foundation
  • Ms. Janine Shelffo
  • Sarah Long & David Solomon Family Foundation
  • Katherine Farley & Jerry Speyer
  • Dr. Michael Stowell
  • Sullivan & Cromwell LLP
  • Allyson Tang & Thomas Widmann
  • The Green Fund
  • The Rainwater Charitable Foundation
  • The Robert M. Hatfield Foundation, Inc.
  • UHG
  • Dr. Kathryn Walder
  • Mrs. Terry L. Walter

$5,000-$9,999

  • Anonymous
  • Mr. Daniel Arnow
  • Mary & Dick Benioff
  • Nomi & Neal Bergman
  • Michael Berlin
  • Larry & Dinah Bird
  • Mr. Steven Blad
  • Amy Kreitzberg & Richard Bonaventura
  • Paul Boylan
  • Brazill Brothers & Associates
  • Dr. Robert Bretscher
  • Dorothy Bryan
  • Erica & Ryan Burns
  • Sandy & Robert Cannon
  • Capital Advisors
  • Robert Chaikin
  • Dr. & Mrs. Kenneth Citak
  • Kaye Cowden
  • Davis Wright Tremaine LLP
  • Mr. James Deeley
  • Dr. Aneesha Dhargalkar & Mr. Amol Dhargalkar
  • Diamonstein/Spielvogel Foundation
  • Susan & Robert Dickinson
  • Mr. Michael Dircksen
  • James K. Ferguson Foundation
  • Bruce Gordon & Tawana Tibbs
  • Mr. Robert Griffith
  • Haverford Trust
  • Mr. Daniel Hedaya
  • Mrs. Janet Hensley
  • Mrs. Mary Hohlweck
  • Mr. & Mrs. Jeffery Hunter
  • Johnson & Johnson Matching Gifts Program
  • Lisa T. Jung
  • Ms. Kathleen Keegan
  • Kunz-Powell & Associates, Inc.
  • Terry Lang
  • Kathleen Blum & Paul Lester
  • Lindenmuth Family Foundation
  • Locust & Co. Inc.
  • Leslie & John Malone
  • Ms. Jillian Marcus
  • Dr. Joseph C. Marquez
  • Mr. Lyle McCarty
  • Mr. KC McCullough
  • Gillian & Sylvester Miniter
  • Mr. & Mrs. Steven Alan Miron
  • Stacy Monson
  • Mrs. Patricia Moser McCarthy
  • Neubauer Family Foundation
  • Next50
  • Novikoff Family Foundation
  • Mr. & Mrs. Graham O’Brien
  • Omni Cable Corporation
  • Mr. David Pfeifer
  • Pollart Electric Sales, Inc.
  • Mr. & Mrs. Edward J. Quinn, Jr.
  • Brian J. Rice
  • Richard L. & Lois S. Werner Family Foundation
  • Community Foundation, Rochester Area Community Foundation
  • Mr. & Mrs. Larry Rodger
  • Mr. & Mrs. Timothy Romani
  • Ms. Susan Rosenberger
  • Mrs. Gloria Roth
  • Michelle Ores & Charles Schorin
  • Sempra
  • Mr. Richard Silva
  • Charles & Elise Smith-Dewey
  • Ms. Nancy Smyth
  • Mr. Arthur J. Sommers
  • Chris Steinkoenig
  • The Newman Foundation, Inc.
  • UCSF Memory and Aging Center
  • Viking Global Foundation
  • Lulu & Anthony Wang
  • Wave Life Sciences
  • The Wozniak Family
  • Coy & Tessa Wright
Brian & Tony - IR24

“My neurologist gave me a packet and I filled out a card to join AFTD’s email distribution list, and that’s how I began to learn more about FTD.”

Brian Dowden (left), who is living with FTD, and his partner Tony

$2,500-$4,999

  • Mr. Dave W. Andrews
  • Atkore Inc.
  • Bloomberg LP, recommended by Jennifer Batchellor
  • Bryan Boerschel
  • BoosterHub
  • Jennifer Braceras
  • Donald Brown
  • Mr. Michael Burns
  • Mrs. Patricia Carey
  • Joanne Chang
  • Chaucer Charitable Foundation
  • CME Wire and Cable
  • Colonial Oaks Golf Club Inc.
  • Tanner Combias
  • Maura Cutter
  • Mr. & Mrs. Alec Dafferner
  • Mrs. Charlene Dalrymple
  • Ms. Alice B. Diamond
  • Zade Djelosevic
  • Mrs. Constance Doerr
  • Alison Douglass & Goodwin Procter LLP
  • Mrs. Nancy W. Duncan
  • Donald Elfvin
  • Entourage Salon & Spa
  • Ms. Karen Fabean
  • Pawel Fludzinski
  • Mr. Thomas Gannon
  • Ms. Niria Gautreaux
  • Dr. Joshua Hedaya
  • Mrs. Susanne Louise Hedaya
  • Betsy & Jack Hennessey
  • Mrs. Anne Collins Hodsdon
  • Mr. & Mrs. David A. Hogan
  • Lynn & Ralph Huber
  • Hughes Hubbard & Reed LLP
  • Mr. Emre Kiciman
  • Dr. David Knopman
  • Lighting Solutions
  • Mr. George Lyngarkos
  • Mr. Bruce MacNeil
  • Anil Mahesh
  • Microsoft
  • Ms. Ellyne L. Myers
  • Mr. Jonathan Nagin
  • Jim Neuberger and Helen Stambler Neuberger Foundation
  • Mr. Steven O. Newhouse
  • Tisha & Jeffrey Ostrager
  • Joseph Parks
  • Rose-Marie Pelletier & Sue Sweeney
  • PKA Architecture
  • Edward Plunkett
  • Principal Financial
  • Izaz Rahman
  • Mr. & Mrs. Edward Robertson
  • Brian Rose
  • Gregory Roslonowski
  • Mr. & Mrs. Jack Seibald
  • Ms. Lisa M. Stevens
  • Ms. Rhonda Suhrie
  • Sunrise at East 56th
  • Dr. Margaret Sutherland
  • The Fortin Foundation
  • The Robert A. & Shirley J. Jones Foundation
  • Thea Enterprises, LLC
  • Thrivent Financial
  • Kimberly Pang Torres & Brian Torres
  • Dr. Daniel Vance
  • Michael Weinreb
  • Christopher Westerlind & Odyssey Search Partners
  • Ms. Cheramy White
  • Mr. David N. White
  • Worley Erhart-Graves Financial Advisors

$1,000-$2,499

  • Lois Abbott
  • Abbott Laboratories
  • Adobe
  • Bryson Alef
  • Mrs. Virginia Alexander
  • Alzheimer’s Drug Discovery Foundation
  • Dr. Halima Amjad
  • Mr. Bruce C. Anderson
  • Hans Andreasen
  • Nikolay Anisimov
  • Anonymous
  • Ian & Sandra Asplundh
  • Ms. Mary Auth
  • Jennifer Ayer
  • Madonna M. Bailey Family
  • Kenneth Bakst
  • Mr. & Mrs. Ryan Baldino
  • Daniel Ball
  • Ms. Jeanne Bancroft
  • Douglas S. and Barbara J. Barrett Family Foundation
  • Lt. Gen. & Mrs. Michael J. Basla
  • Judy Bearer
  • Mr. Scott Beckelman
  • Mr. Joseph W. Bellwoar, Jr.
  • Mr. & Mrs. Peter Thomas Bellwoar
  • Ms. Joan L. Beranbaum
  • Matthew Berger & Ernst & Young
  • Bruce Bernstein
  • Mr. & Mrs. Paul Bevenour
  • Mr. Sadguna Bhatt
  • Charlotte & David Biegelsen
  • Kathy Bigham
  • Mr. Kyle Birmingham
  • Elise & Roman Bninski
  • Mr. & Mrs. Bob Boerschel
  • Bruce Boerschel
  • The Bowers Family
  • Mrs. Eden Brown
  • Buffalo Wings & Rings, LLC
  • Burkhart Enterprises
  • Frank Byrd & Pung-Pung Huang
  • Chris & Sharon Callahan
  • Lawrence & Teresa Cantwell
  • Rev. James Cardosi
  • Ms. Holly Carroll
  • Mr. & Mrs. Bruce Cebell
  • The Chadakoff Family
  • Tracy Chadwell
  • Ms. Kimberly Chapleski
  • Russ Charlton
  • Simon Ke Chen
  • Mr. Gil Chorbajian
  • Mr. & Mrs. Herbert Chorbajian
  • Mrs. Tammy Clement
  • Mrs. Patricia Coburn
  • Joyce Coleman
  • Commonwealth Land Title Insurance Company
  • Mr. Earl W. Comstock
  • Mrs. Helen-Ann Comstock
  • Robert Connelly
  • Mr. Jack L. Connor
  • Michael Cooney
  • Mr. Roger Copeland
  • Manon Cox & Dan Adams
  • Mr. & Mrs. Joseph F. Daniels
  • Aaron Daniels
  • Adam Daniels
  • Mary Ann Davidson
  • Mr. Owen Davis
  • DDK Sales
  • Dann DeMund
  • David Dennard
  • Sharon & James Denny
  • Mr. Stanley DeRocher
  • David Dickinson & Diane DiMeo
  • John Dickson
  • Ellen Dotts
  • Susan Dowd
  • Tiffany Dowdy
  • Ms. Cheryl Ann Driscoll
  • John Duncan
  • Mrs. Mary Beth Durant
  • KM Durbak
  • Francis Dwyer
  • Ms. Susan A. Eissler
  • Mr. David Ellison
  • Ms. Joann Ely
  • Mrs. Mary Ervolina Atkins
  • Mark & Colleen Espinosa
  • The Fadem Family Foundation
  • Mr. Jason Fehon
  • Mrs. Debbie Fenoglio
  • Mr. Zach Fenoglio
  • Gregory Firestone
  • Mr. Robert Fischbach
  • Fishtown Pickle Project
  • Jim & Jennifer Forese
  • Francis Metals Company, Inc.
  • Mr. Darren A. Friesen
  • Mrs. Virginia Fry
  • Mr. Ronald Fultz
  • Kasha & Kevin Gauthier
  • Mr. Donald Gibson
  • Ms. Kathleen Gilhooly
  • Ms. Teresa Goebel
  • Christina Goldschmidt
  • Mrs. Gena Goodwin
  • Google
  • Edward Goss
  • Ms. Edith Grady
  • Mrs. Judith Graves
  • Mr. & Mrs. David & Robin Gray
  • Dr. David Gross
  • Ms. Sandi Grow
  • Mr. Richard Hagen
  • Ms. Jamie Hale
  • Mr. & Mrs. Charles Hanson
  • Cassandra Hardman
  • Ms. Christine P. Hathaway
  • Mr. & Mrs. Tim Hatlen
  • Jamal Haughton
  • Harold Hedaya Family Fund
  • Mrs. Marie Henderson
  • Matt & Kristen Henry
  • Hidden Lakes Dental Care
  • Ms. Joanne Ho
  • Mr. & Mrs. Craig Holleman
  • Elizabeth Hollingsworth
  • Ms. Jessica Holmes
  • Ms. Kira Holmes
  • Peter Hottinger
  • Minalie Chen & Jackson Hsieh
  • Dr. Gene Huebner
  • Mr. & Mrs. Mark Hyams
  • Illinois Disability Assocation
  • Tiffany Jansen
  • Bechara Jaoudeh
  • Mr. & Mrs. Aram Jerrehian
  • Mr. & Mrs. D.L. Jesperson
  • Katya Jestin
  • Ms. Jennifer Johnson
  • Nancy Jospey
  • Mr. Raynard Kanemori
  • Mrs. Helen Kanter
  • Mr. Robert Kaplan
  • Terry Keehan
  • Michael Keeney
  • Brian Kelahan & Colleen Connor
  • Mr. Winston Kenworthy
  • Dave Kerwood & Bridget Graham
  • Teresa & Luther King
  • Jeanne D. Klobedans
  • Gary Koch
  • Heidi Kottke-Brod
  • Ms. Twylla Krehl
  • Kreisberg-Leib Family Foundation
  • Carol H. & Robert D. Krinsky
  • Mr. Armin A. Krueger
  • Dr. Jary Larsen
  • Lazard Ltd.
  • Dr. Gerald S. Lazarus
  • Mr. & Mrs. Gabriel Lebrun
  • Mrs. Barb Leuschen
  • Mr. & Mrs. Richard Levine
  • Peter Levy
  • Liberty Mutual
  • Stephanie Liddy
  • Amy Lipsitz & B. Diane Hayes
  • Shiao Hong Lo
  • Vicki Lockhart Sorrell
  • Mark & Joan Lohr
  • Mr. Alan Lowe
  • Ronda Lubin
  • Dr. Anne Lueck
  • Mr. Charles Luik
  • Magnetar Capital Foundation
  • Ketty & Francois Maisonrouge
  • Ms. Jacqueline Makinen
  • Anthony Marangiello
  • Mr. Brian Marler
  • Shelia May
  • Mr. Robert Maynard
  • Mr. & Mrs. David J. McCay
  • Mr. Roger McCollum
  • Douglas McDuffee
  • Donna McGrath
  • Mr. & Mrs. Patrick Mele
  • Mr. & Mrs. Galen D. Miller
  • Casey Molloy
  • Rhonda Molloy
  • Donald Molony
  • Kathleen Molony
  • Mr. & Mrs. Douglas Morgan
  • Dermott Mullan
  • Satoru & Hiroko Murase
  • Susan Murphy
  • Perry Nagin
  • Mr. Martin Neidell
  • Mr. Lawrence Neubauer
  • Mrs. Mary Jo Nielsen
  • Ms. Jill Nolte
  • Mrs. Stephanie Norville
  • Mr. & Mrs. Michael D. Nunno
  • Patrick O’Hara & Family
  • Ms. Faye S. Olivieri
  • Melissa Owens
  • Adelaide Pagano
  • Mr. Joe W. Pang
  • Mr. & Mrs. Stuart Peltz
  • Penn’s Way
  • Mr. Mike Perri
  • Jeff Pfeifer
  • Dr. Creighton Phelps
  • Sara Pikofsky & Dan Eisen
  • Dr. & Mrs. Robert Pordy
  • John W. Porter
  • Mr. & Mrs. Aryeh Portnoy
  • Mr. Wesley Posvar
  • Sam Powers
  • Caroline & Thomas Przybylowski
  • Mr. & Mrs. Edward Quinn
  • Ms. Patti Rarey
  • Neel Ray
  • Rebel Nail Salon LLC
  • Red Hat
  • Michelle Rice & Chris O’Conner
  • Mrs. Alison Riddiford
  • Mr. Gregory Robbins
    Lili Roche
  • Scott Rose
  • Mr. Stephen Rosenblatt
  • Rostair Foundation
  • Craig Rothfeld
  • Mrs. Jo-Ann Rulison
  • Mr. Steven Rulison
  • Mr. Ron Sakoda
  • Mr. Tom Saponas/Saponas Foundation
  • Ms. Beth Schatman
  • Vicki Schuman
  • Mr. & Mrs. Mark Sellon
  • Ms. Catherine Sharpsteen
  • Mr. Popkin C. Shenian
  • Mrs. Judith Shippy
  • Mr. & Mrs. Alan H. Simon
  • Mr. John Sindoni
  • Meghan E. Sise
  • Marguerite Sneed
  • Ms. Janet Snoddy
  • Ms. Kim Stasa
  • Mr. & Mrs. James Staten
  • Steiner Family Foundation
  • Stellar Solutions Foundation, recommended by Joyce Park
  • Andrew Steverman
  • Strong Foundation of New York
  • Sunrise Tours
  • Mr. Gary R. Surprenant
  • Dale Ann & Schuyler Suydam
  • Irby N. & Marion H. Taylor Family Foundation, a Donor Advised Fund of U.S. Charitable Gift Trust
  • Stephen Tennant
  • The Barash Group
  • The Bluefield Project to Cure Frontotemporal Dementia
  • Mr. Jason Tillis
  • Ms. Sarah Tipton
  • Ms. Vicki Toothman
  • Dr. Krystal Tyler
  • Ms. Diane S. Urch
  • Mrs. Helen Van Son
  • Mr. Matias A. Vega
  • Mrs. Susan Vihtelic
  • Virginia Family Dentistry
  • Ms. Karen L. Wakefield
  • Mrs. Caroline Waldeck
  • Richard E. F. and Sandra C. Wallis Charitable Fund at Community Foundation of Western Massachusetts
  • Charles Wang
  • Mr. Richard Wang
  • Mrs. Carolee Weber
  • Alison Weir
  • Candace Weiss
  • Juliette Wheeler
  • Mrs. Linda Wiggins
  • Jackson Willhoit
  • Mrs. Mary Wisneski
  • Linda Witmer
  • Ms. Lisa Witomski
  • Steven Wolfe
  • Charles Wood
  • Ms. Margaret Wood
  • Mr. & Mrs. George Wright
  • Mike Yablonowitz
  • Ms. Janet Zaborski
  • James Zar
  • Thomas Zimmerman
  • Mrs. Joan C. Zlotnick
??????????

“I wanted to share my story to encourage other people of color to understand that these are things you shouldn’t be ashamed of. You should be aware and compassionate. Awareness is where it starts.”

Nicola Perez (left), current care partner to her dad McKenzie Perritt III. Nicola volunteers with AFTD to raise awareness within the African American community

Sustainers of Hope

Our recurring donors, who generously commit to donating to AFTD monthly or annually, sustain our work throughout the year, bringing help and hope to all who face FTD.

*Denotes $1,000 or more given through recurring donations in FY2024.

  • Mr. Brad Adams
  • Ms. Jennifer Allen
  • Filomena Alves-Amado
  • Mr. Dave W. Andrews*
  • Mrs. Kathy Balazs*
  • Ms. Vonita Baldt-Renk
  • Mr. Robert Banstetter, Jr. & Ms. Maria Perotin
  • Judy Bearer
  • Mr. Sadguna Bhatt*
  • Mr. Alejandro Bolivar-Cervoni
  • Ms. Amelia Bond
  • Ms. Teri Bond
  • Michael Brazeau
  • Ms. Sarah Brehm
  • Mr. William Brown
  • Mr. William Bua
  • Mrs. Nancy Chamblee
  • Ms. Kimberly Chapleski*
  • Ms. Deena Chavez
  • Mr. Patrick Clapp
  • Ms. Marcella Clark
  • Ms. Beth Comstock
  • Ms. Elizabeth Corrigan
  • Michael Crookston
  • Brian Croxon
  • Mr. Shane Cunningham
  • Dylan Dagenback
  • Mrs. Janet Daigle
  • Mrs. Linda Deubert
  • Mrs. Deborah Dolan
  • Dr. Joanne Douglas
  • Ms. Carrie Edwards
  • Mr. Dennis Erlick
  • Mr. Jason Fehon*
  • Patricia Ferri
  • Frank Fiola
  • Mrs. Lisa Fischer
  • Ms. Cynthia Franklin
  • Vincent Franzone
  • Drew Freilich
  • Sujoy Gayen
  • Mr. Kevin Gilligan
  • Mr. James Glenn
  • Ms. Dana Grassotti
  • Mrs. Betty Harrington
  • Mr. Steve Harshe
  • Miss Chloe Hedaya
  • Miss Ella Hedaya
  • Dr. Joshua Hedaya*
  • Miss Mia Hedaya
  • Ms. Katrina Hellman
  • Ms. Jessica Holmes*
  • Ms. Kira Holmes*
  • Mrs. Kelley Huemoeller Lewis
  • Vanessa Johnson
  • Ila Kane
  • Brian Kelahan & Colleen Connor*
  • Mr. Brian Kimm
  • Ms. Anna Kuykendall
  • Ms. Paulette Lebouf
  • Rev. Randy Ledbetter
  • Andy Lee
  • Ms. Tara Leifer Clevens
  • Mr. Eliot Levin
  • Dr. David H. Levine
  • Ms. Laurie Lin
  • Ms. Paige Long
  • Mr. Lewis Lowy
  • Mr. Ben Mackenzie-Grieve
  • Mr. & Mrs. Charles Maneval
  • Dr. Joseph C. Marquez*
  • Ms. Margie Marsted
  • Deborah Mattei
  • Ms. Pam Matteson
  • Miss Liz Matthews
  • Mrs. Kathryn McAndrew
  • Mr. Ryan McCarthy
  • Diane & Rip McEniry
  • Mr. Lars McGee
  • Candace Megahan
  • Claire Melancon
  • Ms. Susan Miller Abbott
  • Loran Mulvihill
  • Mr. Joe Murphy
  • George Nickerson
  • Mrs. Joy A. Ortego
  • Mr. Joe W. Pang*
  • Rose-Marie Pelletier & Sue Sweeney*
  • Mr. Mike Perri*
  • Mr. Michael Phares
  • Tom Powell
  • Kirk Price
  • Ms. Doreen C. Putnam
  • Mabel Quinto
  • Houra Rais
  • Ms. Carolyn Ranti
  • Ms. Patti Rarey*
  • Ms. Teresa Ryan
  • Marienne Sadil
  • Mrs. Bryna F. Sarokin
  • Mr. Matthew Schaefer & Mrs. Anna Lebsock
  • Dean Schuckman
  • Mr. Richard Silva*
  • Mr. Sinan Sinharoy
  • Brigitte Slaker
  • Johanna Soto-Boles
  • Michael Stick
  • Mrs. Janet M. Sylanski
  • Ms. Tamara Tittle
  • Dr. Krystal Tyler*
  • Dr. Daniel Vance*
  • James Vasko
  • Ms. Lorraine Walowsky
  • Sheila Waters
  • Mr. Richard Waxman
  • CJ & Tony Widenhouse
  • Mr. Stuart Widman
  • Marquard Wilcutt
  • Mrs. Lisa Williams
  • Mr. & Mrs. Ryan Windhorst
  • Mary K. Winteregg
  • Bill & Juliann Woodhouse
  • Ms. Dorothy Yeh

Fundraisers

Members of our community hosted 489 fundraisers over the past year, raising awareness and vital funds to support AFTD’s mission. We are grateful for the creativity, passion, and dedication shown by these volunteers!

Fundraisers named raised $1,000 or more, listed in descending order.

Independent Events

Spencer Cline & Paul Petras
Bike Across America

The Sidoris Family
18th Annual George F. Sidoris Memorial Golf Outing

The Rose Family
2nd Annual Kim Rose Cure for Dementia Golf Outing

The Moretti & Marcy Families
8th Annual CWM Golf Outing

Deb Scharper
7th Annual Crusade for a Cure Golf Tournament

Paul Lester
17th Annual Letters for Arnette

Andrew & Alexis Newhouse
Wedding Donations

Michael Stowell
Holiday Auction

Luke Smiley
Chattanooga Half Marathon

Spencer Cline
3rd Annual Babson Men’s Basketball Tournament

Laura Krey
Ironman New York

The Pang Family
Dollars for Dim Sum

Matthew Hatfield
The Robert M. Hatfield 13th Annual 2023 Golf Tournament

AFTD Staff
Marsh Creek Triathlon

Justin & Kara Cline
Wedding Donations

Bob Powers
Laughing Matters Play

Jim Lyne
1 Million Meter Row

Redeye Reviews
Top 10 Bruce Willis Movies

Lorraine & Lizzie Bonaventura, and Angela Dufresne
Art Exhibit and Sale

Nidal Estiban & Melinda Kavanaugh
Entourage Salon & Spa Annual Holiday Open House

Tammy Clement
Alzheimer’s Walk

Thomas Massey
Disney Marathon Dopey Challenge

Hannah McCarthy
Chicago Marathon

Naomi Reynolds
CB for CBD 5K

Katarina Dominguez
Franklin & Marshall Swim-a-thon

Michelle Greco
Peace, Power, Soul Fitness Class

Bob Powers
Chasing Rainbows Play

Angelique Bolding
Motown Memories

Meredith Burns
Does Womanhood Live in the Body or the Brain?

Marc & Julie Smith
Hops for Hope Mini Concert

Kimberly Stasa & Nazareth Area High School Sports Teams
FTD Hot Shot Challenge

Richard Nesin
Scott Kempner Memorial Party

Gerda Spears
Jeans Day

Chelsie Olivieri
Rebel Nail Salon

Brooke Sepelak
Wineglass Marathon

Fishtown Pickle Project
IMO Dominic Toscani

Stephanie Fagin-Jones
Alexander’s Concerts

Tribute Fundraisers

Stacy Monson
in memory of Michael Monson

Katie Sullivan McDonald
in memory of Kevin J. Sullivan

Jenna Matthews
in memory of Daniel Bert Locklear

Anna Ibarra
in memory of Victor Ibarra Jr.

Joan Greaves
in memory of Constance Agatha Roberts

Laura Monday
in memory of Richard Zaborski

Joel Westervelt
in memory of Joy Westervelt

The Fry Family
in memory of Joseph C. Fry

Spencer Paul IR24

“My older brother recently found out that he also has the gene mutation. Our increased chance of getting FTD motivates me to raise awareness and funds for research — to save my life and my siblings’ lives.”

AFTD Ambassador Spencer Cline, whose father, Lawrence, had FTD caused by the C9orf72 mutation. In the summer of 2024, Spencer (left) and his future brother-in-law Paul Petras (right) completed a 3,000-mile cross-country bike ride to raise awareness and support AFTD’s mission

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  • Janice Lee
  • Daniel Hedaya
  • Merry Bergan
  • Mike Brucklier
  • Anne & Morganne Hodsdon
  • Caitlin Lee
  • Elizabeth Moore
  • Molly & Chase Trimmer
  • Julia Pierrat
  • Melissa Schmitz
  • Team Jack Attack
  • Edward Brown
  • Emily Chorbajian
  • Zoe Pierrat
  • Joe Pang
  • Mark Christopher
  • Elizabeth Hollingsworth
  • Rachel Cohen
  • Rice Family
  • Tracy Needle
  • Shawn & Virginia Alexander, and Katie Smith
  • Caroline Waldeck
  • Hannah Lipman
  • Tara McElwain
  • UT Austin Aphasia Lab
  • Ngozi Musa
  • Frances Altick
  • Alex Rose
  • Flavia Mahfuz
  • Stephen Fenoglio & LeAnn Zezula
  • Kelly Canavan
  • Veronica Wolfe
  • Lisa Claire & Otto Witomski and Kristi & Judy Keating
  • Taylor Sanchez
  • Jennifer & Gemma Anyong
  • Katie Needle
  • Kim Torres
  • Maurice Lee
  • Cary Family
  • Melina Westerlind
  • Steven Gruber
  • David Topolewski
  • Sidney & Melissa Schmitz
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  • Kammerer Family
  • Michelle Slough
  • Camille Dunn
  • Kristin Pursley
  • Scott Oxarart
  • Chuck Anastasia
  • Dianna Smith
  • Jillian Condran
  • AFTD Board/Alumni
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  • Steve Bellwoar
  • Marc & Julie Smith
  • Gary’s FUB of Love
  • Heather Sellers
  • Emma Heming Willis & Nicole Petrie
  • Passage Bio
  • Terry Walter
  • Margaret Wood
  • Debbie Elkins
  • Jamie Hale
  • Ryan Windhorst
  • Sharon DeFelices
  • Sandra & Diana Gonzalez-Morett
  • Kathy & Sara LaFone
  • Liz Zadnik
  • Brandee Waite
  • Karine Finken
  • Rebecca Wellner
  • Colleen Franzreb
  • Susan Newman
  • Melissa Dube
  • Kim Rice
  • Adams Family
  • Morabito Family
  • Fishtown Pickle Project

Facebook Fundraisers

  • John Mayer
  • Halima Amjad
  • Tom Massara
  • Flo Willis Rogers
  • Dennis Nave
  • Steven Mesnick
  • The Cole Classic
  • Bill Waters
  • Karen Strobel
  • Kristin Holloway
  • Kali Tormoen
  • Caroline Przybylowski
  • Niki Toscani
  • Deborah Scanlan
  • Shoshana Derrow Krilow
  • Debbie Kohl
  • Mason Gunter
  • Anna Kuykendall
  • Mike Presnal
Heather IR24

“The resources and opportunities offered by AFTD allow you to have a little more grace, patience, and hope.”

Heather Miller (right), former caregiver for her mom Susan Suchan, who had PPA. By making a documentary about her mom’s life, Heather hopes to continue their shared legacy of raising awareness, educating the public, and supporting others on this journey