The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Thursday, October 31, 2024 | 4-5 p.m. ET

HEALTHCARE PROFESSIONAL WEBINAR

Diagnosing Primary Progressive Aphasia

Ruth Dunbar Davee Professor of Neuroscience and Founding Director Emeritus of the Mesulam Center for Cognitive Neurology and Alzheimer’s Disease at Northwestern University

Marsel Mesulam, MD

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Astellas and AviadoBio Announce Exclusive License Agreement for FTD-GRN Gene Therapy

Astellas Pharma and AviadoBio have announced an exclusive license agreement for AVB-101, an experimental gene therapy for FTD-GRN currently undergoing a phase 1/2 clinical trial in the United States and…

Volunteer Update: Celebrating the Growth of FTD Awareness

It is not often that the community comes together in person, so it was extra special when AFTD Ambassadors Melissa Fisher and Scott Rose organized a gathering in Portland to…

Advancing Hope – AFTD Attends 2024 International Society for FTD Conference

The AFTD was proud to have ten staff members, and four Board members attend the International Society for FTD Conference (ISFTD) in Amsterdam in late September. This is a premier…

Study Finds That FTD and ALS Have Similar Cellular and Molecular Characteristics

A study by MIT and Mayo Clinic researchers published in the Cell journal finds that FTD and ALS have strikingly similar cellular and molecular characteristics despite their clinical differences. The…

The Power of Advocacy

AFTD would like to highlight the power of advocacy in contributing to the greater awareness of FTD. This year’s World FTD Awareness Week was filled with contributions large and small by advocates…

Dear HelpLine: Medication and FTD

Dear HelpLine, My mom has FTD and we have an upcoming appointment with her physician. We’d like to talk about medications to help with some of her symptoms. What should…

Psilera Announces Positive Preclinical Data for FTD Intervention Candidate

Biotechnology company Psilera announced positive preclinical data for its FTD drug candidate, moving it another step towards first-in-human studies. The company also underscored promising data from efficacy studies conducted by…

AFTD Care Partner Learning Series Webinar: Navigating Behavioral Variant FTD Symptoms

Behavioral variant FTD, or bvFTD, makes up almost half of all FTD diagnoses. Behavioral symptoms can fundamentally alter one’s personality, which can be extremely distressing for the person diagnosed and…

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