The Association for Frontotemporal Degeneration

AFTD Ambassador Spencer Cline and his future brother-in-law Paul are biking across America from Astoria, Oregon to Charleston, South Carolina to help support AFTD's mission and spread Help and Hope.

Spencer & Paul's Bike Across America for AFTD

Donate to Spencer & Paul's Fundraiser

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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Action

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

In Memory of George F. Sidoris: A Siblings’ Labor of Love

More than 20 years ago, siblings Christine and George J. Sidoris first noticed troubling changes in their father’s behavior during a family gathering. “Normally, when my brother and his family…

Advancing Hope: AFTD Attends AAIC 2024.

Debra Niehoff, Kim Jenny, and Shana Dodge from AFTD and Sweatha Reddy from the FTD Disorders Registry attended the Alzheimer’s Association International Conference (AAIC), which took place in Philadelphia starting…

The Lived Experience of FTD: Getting to Know the Persons with FTD Advisory Council: Deb Jobe

Formally chartered in 2020, the Persons with FTD Advisory Council works to ensure that the insights and perspectives of people living with FTD are included in the development of AFTD’s…

Neurology Live Aviado Bio CMO - FB LI TW

Aviado Bio CMO Discusses ASPIRE-FTD Clinical Trial with Neurology Live

In a recent interview with Neurology Live, Aviado Bio chief medical officer David Cooper, MD, discussed the company’s Phase 1/2 ASPIRE-FTD trial. Dr. Cooper shared how the company’s AVB-101 gene…

Advocacy Update: FTD Awareness Week

With FTD Awareness Week quickly approaching, we asked AFTD advocates to help us obtain a resolution or proclamation in every state, and the community has definitely risen to the occasion.…

AFTD Brand Influencer Discusses Commitment to Caring

AFTD Brand Influencer Nicole Petrie shared her family’s FTD journey with host Lisa Opie on the podcast Miss Represented earlier this year. Petrie is a model, activist, and entrepreneur, and…

Study Investigates Incidence Rates of FTD and Other Young-Onset Dementias in Italy

A study published in the journal Diagnosis, Assessment & Disease Monitoring investigates the incidence of neurodegenerative young-onset dementias (YODs) like FTD in the Brescia province of Italy. As highlighted by…

Image: AFTD Ambassador Debbie Elkins shares her story on podcast.

AFTD Ambassador Shares Her Story on “All Home Care Matters” Podcast

AFTD Ambassador Debbie Elkins and AFTD Support and Education Director Esther Kane, MSN, RN-CDP, appeared on the podcast All Home Care Matters in July to discuss the changed nature of…

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