The Association for Frontotemporal Degeneration

September 22 – September 29, 2024

World FTD Awareness Week

We’re in this together. #endFTD

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You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

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Diagnostic Information

Monday, September 30, 2024 | 1-2 p.m. ET

Navigating Behavioral Variant FTD Symptoms

Care Partner webinar

Care Partner Learning Series:

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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Action

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provide a resource,
an outlet, and a place
to connect with others
who understand.

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Guest Feature: “Yes, and…” by Catherine Savini

Navigating the symptoms of FTD can be difficult for loved ones, especially when someone living with the disease experiences memory-related challenges. However, as Catherine Savini shares, meeting symptoms with “yes, and” instead…

Paris, IL mayor, Craig Smith, center, presents Dawn and Tim Kirby with a proclamation recognizing FTD Awareness Week.

When One Voice Sounds Like a Chorus: Dawn Kirby’s Relentless Campaign to Raise FTD Awareness

Dawn Kirby and her husband, Tim, are getting the word out about FTD. The couple were recently featured in an article in the Prairie Press (Paris, Ill.), where they talked…

Lima Awareness Week Proclamation - FBLI 1

AFTD Volunteer Secures 3 FTD Awareness Week Proclamations in Ohio

Lima, Ohio is the most recent community to officially proclaim September 22-29 as FTD Awareness Week. Resident Jack George successfully advocated for the official proclamation, which Lima Mayor Sharetta Smith…

Advancing Hope: AFTD Hosts Industry Advisory Panel

On August 8 and 9, AFTD hosted an industry advisory panel in which a group of people whose lives have been touched by FTD shared their experiences and perspectives with…

Text: One woman’s journey: from getting diagnosed to attempting suicide to embracing life Background: Photo of Deb Jobe, Persons with FTD Advisory Council member

Guest Feature: One Woman’s Journey – from Getting Diagnosed to Attempting Suicide to Embracing Life

September is Suicide Prevention Month. Below, Deb Jobe, a member of AFTD’s Persons with FTD Advisory Council, courageously shares the story of her suicide attempt following an FTD diagnosis, and…

Medical Technology CEO Discusses Using EEG to Differentiate FTD and Alzheimer’s

In an interview with Neurology Live, Advanced Brain Monitoring CEO Chris Berka shares insights from a pilot study that found how electroencephalography (EEG) can be used to differentiate between FTD,…

A Conversation with Juan Chavez, MD, of Passage Bio

AFTD recently spoke with Passage Bio Vice President of Clinical Development Juan Chavez, MD, about the company’s work to develop a therapy addressing FTD. Here, Dr. Chavez shares where he…

Acurastem Receives CIRM Grant for Targeted Therapeutic Program for ALS/FTD

Biotechnology company AcuraStem announced that it has received a $4 million grant from the California Institute for Regenerative Medicine (CIRM) for its targeted therapeutic program for ALS and FTD. The…

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