The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

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Diagnostic Information

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May 1-2, 2025

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

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News & Events

Extracellular Vesicles in Plasma Could be FTD-ALS Diagnostic Biomarker, Study Finds

A study published in Nature Medicine finds that a type of particle associated with specific cell subtypes could potentially be utilized as a biomarker for FTD and ALS disorders. The…

Denali and Takeda Open FTD-GRN Clinical Trial Site at UPenn

Denali Therapeutics and Takeda Pharmaceutical Company’s phase 1/2 clinical trial for FTD caused by GRN mutations is opening its first U.S.-based trial site at the University of Pennsylvania (UPenn). The…

Tips & Advice: FTD and Incontinence - A Troubling Symptom

Tips & Advice: Incontinence – A Troubling Symptom

Incontinence is a common symptom of FTD and other dementias. But for both care partners and persons diagnosed, incontinence can be one of the more difficult symptoms to manage or even…

Ohio Care Partner Shares Story to Help Others on the FTD Journey

Mary Kay Verhoff, a former FTD care partner from Ohio, recently published a book that tells the story of coming to terms with and navigating her husband’s decline from FTD.…

Can a Tau PET Tracer Aid FTD Diagnosis? Study Explores How Tracer Performs in Other Tauopathies

A study published in Science Translational Medicine explores how well the brain imaging tau PET tracer F-MK-6240 (flortaucipir) captures the presence of underlying protein clumps seen in post-mortem Alzheimer’s tissue.…

Help & Hope: The Top Articles of 2024 FTD

Help & Hope in Review: The Top Articles of 2024

AFTD is committed to ensuring Help & Hope delivers informative articles and practical resources to ease your family’s FTD journey. Each year, we look back through our archives to see which features…

Dear HelpLine: Difference Between Clinical Care and Clinical Research for FTD

Dear HelpLine: The Differences Between Clinical Research and Clinical Medical Care

Dear HelpLine, I have FTD and have enrolled in a research study at a major medical center. My care partner and I travel to the site twice a year and…

Linde Jacobs Shares Her Family’s FTD Journey with the New York Times

A recent article in The New York Times highlights the inspiring story of Linde Jacobs, a nurse and advocate carrying a genetic frontotemporal degeneration (FTD) variant. Her journey exemplifies the…

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