The Association for Frontotemporal Degeneration

In the summer of 2024, Spencer Cline completed a 3,500-mile cross-country bike ride to raise awareness and support AFTD’s mission in honor of his father, Lawrence, who had frontotemporal degeneration (FTD).

Raising FTD Awareness Across the U.S.

Donate to Support AFTD's Mission

Spencer Cline:

Omni Interlocken Hotel
Denver, CO

AFTD 2025
Education Conference

Connect · Learn · Engage

May 1-2, 2025

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Text: Advancing Hope - AFTD Attends 2025 American Academy of Neurology Meeting | Background: AFTD Attends 2025 American Academy of Neurology Meeting

Advancing Hope: AFTD Attends 2025 American Academy of Neurology (AAN) Meeting

Staff from AFTD and the FTD Disorders Registry attended the American Academy of Neurology’s Annual Meeting earlier this month in San Diego. This meeting typically attracts around 14,000 international attendees,…

April 2025 How to Find a Genetic Counselor - FBLI

AFTD Webinar: How to Find a Genetic Counselor

FTD has a stronger genetic risk than other dementias. While not all FTD is inherited, understanding whether the FTD in your family is genetic is crucial: it can confirm the…

PPA Telehealth Intervention Gets Positive Results in Phase 2 Clinical Trial

A phase 2 clinical trial evaluating a telehealth therapy intervention for primary progressive aphasia (PPA) published positive results, with participants showing improvement in PPA’s communication-related symptoms. The Communication Bridge 2…

AFTD Ambassador Spencer Cline Delivers Moving Keynote Address at Hope Rising

“We are not a product of what has happened to us. We have the power of choice.” ― Stephen Covey, Author “When your biggest fear is FTD, it makes you…

Advocacy Update: Amplifying AFTD’s Advocacy

AFTD is deeply concerned about staff cuts and funding disruptions at the U.S. Department of Health and Human Services (HHS), and the potential impact they will have on dementia-focused research…

Study Evaluates the Efficacy of Nasally Administered Hormone for Apathy in FTD

A study published in the journal The Lancet Neurology evaluates the efficacy of the hormone oxytocin as a treatment for apathy, a common symptom of FTD disorders. Co-authors of the…

ABC News Honors AFTD Ambassador Spencer Cline as “Person of the Week”

Raising FTD awareness was a key goal of Spencer Cline’s as he set out from Oregon on a bike ride across America last summer. He got a well-deserved tailwind in…

Speech Therapy CE Course Features AFTD Ambassador Dawn Ducca

AFTD Ambassador Dawn Ducca is interviewed in a new hourlong continuing education episode for speech language pathology (SLP) professionals on the platform Speech TherapyPD. The episode, “Understanding and Caring for…

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