Persons with FTD Advisory Council Special Article: Holiday Madness
This article was written by a person with FTD to highlight the challenges of dealing with the holidays with an FTD diagnosis. AFTD hopes care partners and those diagnosed can benefit from the perspective presented here. By Cindy Odell, former Council member All holidays can be stressful for anyone at any time. It doesn’t matter…
Read MoreAll in the Family to end FTD: Colonial Electric’s Food for Thought Event Clears More than $1 Million Since Inception
AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD for nearly 30 years. Since Steve’s initial Colonial Electric Food for Thought gathering in 2014, the event, which features a nine-hole golf tournament, cocktail hour,…
Read MoreA Conversation with a Neurologist at Denali Therapeutics
Recently, AFTD had a conversation with members of the Denali Therapeutics team, including Dr. Richard Tsai, to provide insights into their work to develop a therapeutic with Takeda to treat FTD-GRN (frontotemporal dementia caused by GRN gene mutations). Dr. Tsai is a neurologist at Denali where he partners with other scientists to design and conduct…
Read MoreThanks to Generosity of AFTD Ambassador, Californians Receive Crucial Financial Help
Terry Walter, an AFTD Ambassador in California and Nevada, has been a force for positive change and support since 2008, when she began volunteering for AFTD. Over the years she has organized golf tournaments, convened people affected by FTD through her Meet & Greet events, and raised funds for AFTD’s mission with her annual Food…
Read MoreProtected: A Conversation with a Neurologist at Denali Therapeutics
There is no excerpt because this is a protected post.
Read MoreAFTD Care Partner Learning Series Webinar: Navigating the Holidays with an FTD Diagnosis
The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences. In this webinar, AFTD HelpLine Manager Stephanie Quigley leads a discussion with members of AFTD’s Persons with FTD Advisory Council as they share ideas and…
Read MoreAFTD Advocacy: State Resolution Training
This training will cover the process of how to obtain a resolution — from identifying your legislators to receiving your approved resolution. It will also cover press strategies to maximize visibility and foster more awareness for FTD in your state. Attendees will receive and review the: 2025 Resolution Toolkit Resolution language Press toolkit Advocacy talking…
Read MoreYoung Caregiver Talks About Finding Support Amid FTD Journey on Dementia UK Podcast
A young FTD caregiver named Lizzie discussed the grief, uncertainty, and unexpected responsibilities she faced as she cared for her father — all while navigating the natural changes of young adulthood — in a recent interview with “My Life With Dementia,” a podcast produced by the organization Dementia UK. When Lizzie graduated from college, she…
Read MorePerspectives in FTD Webinar: FTD Research 2024 — Where We’ve Come From and Where We’re Headed
The science of FTD is evolving at a rapid pace and it can be difficult to interpret the scientific advancements and how they may impact families facing an FTD diagnosis. In this Perspectives in FTD Research webinar, presented jointly by AFTD and the FTD Disorders Registry, AFTD’s Senior Director of Scientific Initiatives, Penny Dacks, PhD,…
Read MoreAFTD Webinar: Care Partner Learning Series — Navigating the Holidays with an FTD Diagnosis
The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences. Please join AFTD HelpLine Manager Stephanie Quigley and members of the Persons with FTD Advisory Council as they share ideas and ways they have adapted…
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