Guest Feature: “Yes, and…” by Catherine Savini
Navigating the symptoms of FTD can be difficult for loved ones, especially when someone living with the disease experiences memory-related challenges. However, as Catherine Savini shares, meeting symptoms with “yes, and” instead of “no, because” can turn encounters with frustration and isolation into meaningful moments of playfulness and connection. Recently, a close friend was telling me a…
Read MoreWhen One Voice Sounds Like a Chorus: Dawn Kirby’s Relentless Campaign to Raise FTD Awareness
Dawn Kirby and her husband, Tim, are getting the word out about FTD. The couple were recently featured in an article in the Prairie Press (Paris, Ill.), where they talked about their advocacy on behalf of FTD awareness. Dawn and Tim have fond memories of watching their daughter, Kara Ike, come into her own in…
Read MoreOctober 26, 2024: In-Person Meet & Greet in Middletown, DE
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Jeanne Cestone, taking place from 10:30-11:30 a.m. on Saturday, October 26, 2024. The event will be held at the Appoquinimink Community Library in Middletown, Del. (204 E. Main Street). RSVP for this event…
Read MoreIn-Person Meet & Greet in Middletown, DE
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Jeanne Cestone. RSVP for this event by emailing jeanne_ve_c@yahoo.com. To learn more, download this flyer.
Read MoreUnderstanding Dementia With a Focus on Alzheimer’s & Frontotemporal Dementia (FTD)
AFTD Ambassador Dawn O’Gara will be joining representatives of the Alzheimer’s Association to hold a virtual presentation on FTD and Alzheimer’s disease on Tuesday, October 29, 2024 from 6:00 PM – 7:00 PM EDT. The presentation will provide participants with the opportunity to learn about the signs and symptoms of FTD and Alzheimer’s, and the resources available…
Read MoreSubaru Share the Love Event 2024
In memory of Georgi Sidoris, Scott Campbell of Subaru of Muskegon designated AFTD as one of their Hometown Charities for the 2024 Subaru Share the Love Event. This event will take place from November 21-January 2 and during the event, for every new Subaru that this dealership sells or leases, $75 will be donated to…
Read MoreDementia is Hell: Hells Canyon Car Cruise
AFTD Ambassador Scott Rose is hosting a car cruise on Labor Day weekend 2025 in Portland Oregon to raise funds and FTD awareness. The cruise will be a beautiful 5 to 6 hour drive on the Hells Canyon Scenic Byway and is open to both clubs and individuals. Preregistration will include a t-shirt, AFTD info,…
Read MoreAFTD Volunteer Secures 3 FTD Awareness Week Proclamations in Ohio
Lima, Ohio is the most recent community to officially proclaim September 22-29 as FTD Awareness Week. Resident Jack George successfully advocated for the official proclamation, which Lima Mayor Sharetta Smith presented on September 4th at a public meeting. George feels strongly about advocating for FTD awareness because of his own circuitous diagnosis journey. “It took…
Read MoreAdvancing Hope: AFTD Hosts Industry Advisory Panel
On August 8 and 9, AFTD hosted an industry advisory panel in which a group of people whose lives have been touched by FTD shared their experiences and perspectives with companies working on potential FTD treatments. The panel included people diagnosed with FTD, current and former care partners, and biological family members of people with…
Read MoreGuest Feature: One Woman’s Journey – from Getting Diagnosed to Attempting Suicide to Embracing Life
September is Suicide Prevention Month. Below, Deb Jobe, a member of AFTD’s Persons with FTD Advisory Council, courageously shares the story of her suicide attempt following an FTD diagnosis, and how she returned from wanting to end her life to fully embracing it. As I sit here in my backyard feeling the sun’s warmth, watching…
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