Empower Help & Hope this #Giving Tuesday
Michele Howerter, whose mom Nancy is living with primary progressive aphasia, is sharing her family’s story for Giving Tuesday – a day to recognize and support mission-focused organizations worldwide. AFTD will once again participate in this annual campaign to raise awareness of FTD and funds to drive our work on behalf of all facing this…
Read MoreAdvancing Hope: Sponsored Testing Programs; opportunities for no-cost genetic testing
Once you have chosen to pursue genetic testing, it can be frustrating to learn that the cost is too high, or insurance will not cover genetic testing. Sponsored testing programs (STPs) provide the opportunity to access genetic testing at no-cost, removing financial barriers and enabling greater access to genetic counseling and testing. STPs are collaborations…
Read MoreFerrer Doses First Participant in Phase 2 Study for PSP Treatment
Pharmaceutical company Ferrer announced that it has dosed the first participant in the PROSPER phase 2 clinical trial for an experimental treatment for progressive supranuclear palsy. The ongoing trial seeks to evaluate the safety and efficacy of the drug FNP-223, which is designed to slow the progression of the disease. The drug works to prevent…
Read MorePersons with FTD Advisory Council Special Article: Holiday Madness
This article was written by a person with FTD to highlight the challenges of dealing with the holidays with an FTD diagnosis. AFTD hopes care partners and those diagnosed can benefit from the perspective presented here. By Cindy Odell, former Council member All holidays can be stressful for anyone at any time. It doesn’t matter…
Read MoreAll in the Family to end FTD: Colonial Electric’s Food for Thought Event Clears More than $1 Million Since Inception
AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD for nearly 30 years. Since Steve’s initial Colonial Electric Food for Thought gathering in 2014, the event, which features a nine-hole golf tournament, cocktail hour,…
Read MoreA Conversation with a Neurologist at Denali Therapeutics
Recently, AFTD had a conversation with members of the Denali Therapeutics team, including Dr. Richard Tsai, to provide insights into their work to develop a therapeutic with Takeda to treat FTD-GRN (frontotemporal dementia caused by GRN gene mutations). Dr. Tsai is a neurologist at Denali where he partners with other scientists to design and conduct…
Read MoreThanks to Generosity of AFTD Ambassador, Californians Receive Crucial Financial Help
Terry Walter, an AFTD Ambassador in California and Nevada, has been a force for positive change and support since 2008, when she began volunteering for AFTD. Over the years she has organized golf tournaments, convened people affected by FTD through her Meet & Greet events, and raised funds for AFTD’s mission with her annual Food…
Read MoreProtected: A Conversation with a Neurologist at Denali Therapeutics
There is no excerpt because this is a protected post.
Read MoreAFTD Care Partner Learning Series Webinar: Navigating the Holidays with an FTD Diagnosis
The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences. In this webinar, AFTD HelpLine Manager Stephanie Quigley leads a discussion with members of AFTD’s Persons with FTD Advisory Council as they share ideas and…
Read MoreAFTD Advocacy: State Resolution Training
This training will cover the process of how to obtain a resolution — from identifying your legislators to receiving your approved resolution. It will also cover press strategies to maximize visibility and foster more awareness for FTD in your state. Attendees will receive and review the: 2025 Resolution Toolkit Resolution language Press toolkit Advocacy talking…
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