News & Events
Community Connection: Join a Community United in Hope with Walk for FTD
Walk for FTD is more than an event – its a powerful movement fueled by community, connection, and purpose. When you join, you become part of a united effort grounded in hope and determination for a future free from FTD. By working together with friends, family, and neighbors, you can support AFTD’s mission and raise awareness…
The Harder Path: One Student’s Mission to Honor Her Father and Advocate for FTD Globally
Lehigh University’s The Brown and White published an article featuring AFTD volunteer Liz Matthews. When Matthews was a young child, her father—a resilient man who overcame a difficult childhood to become a successful dentist, musician, and amateur pilot—suddenly began to change. Not long after, he was diagnosed with frontotemporal degeneration (FTD) and passed away when…
FTD and Young Age of Onset Can Lengthen Time to Dementia Diagnosis, Study Finds
A systematic review published last year in the International Journal of Geriatric Psychiatry by University College London (UCL) researchers explores the factors influencing the time to diagnosis faced by people living with FTD and Alzheimer’s disease. While the factors were varied, the study highlighted that younger age at onset and FTD were associated with a…
Dear HelpLine: Navigating Financial Resources in FTD
Dear HelpLine, My husband was recently diagnosed with FTD, and we are now in a very difficult financial situation. He is no longer able to work and was the primary earner. How do we learn about financial resources, health insurance, and disability benefits? An FTD diagnosis can significantly impact financial stability, often when families are…
Advancing Hope: AFTD Announces 2026 Recipients of the Holloway Postdoctoral Fellowship
AFTD is pleased to announce the two newest recipients of research funding from the Holloway Postdoctoral Fellowship program, generously made possible by the AFTD Holloway Family Fund. The goal of the program is to support promising early-career scientists and clinicians who can shape the next generation of FTD research. Each of these researchers are receiving…
Meet the Researcher: Mark Forman MD, PhD
Dr. Mark Forman is a physician-scientist with deep expertise in drug development. He has held leadership roles for two decades at drug development companies spanning neuropsychiatry, neurodevelopment, and neurodegenerative disorders, including FTD. He is currently the Chief Medical Officer of MindImmune Therapeutics, a pharmaceutical company developing novel therapies for diseases with a neuroinflammatory component. He…
FTD Research Spotlight: Building a Research-Ready Community through the FTD Disorders Registry
Enrolling enough people in FTD studies remains one of the most persistent challenges in FTD research. Whether launching an observational study, a clinical trial, or seeking input from care partners and family members, connecting with the right participants at the right time can significantly impact study timelines and outcomes. The FTD Disorders Registry was created…
FTD Science Digest: Building a Research-Ready Community through the FTD Disorders Registry
Enrolling enough people in FTD studies remains one of the most persistent challenges in FTD research. Whether launching an observational study, a clinical trial, or seeking input from care partners and family members, connecting with the right participants at the right time can significantly impact study timelines and outcomes. The FTD Disorders Registry was created…