The Association for Frontotemporal Degeneration

AFTD CEO Susan Dickinson was joined by Emma Heming Willis at AFTD's 2024 Education Conference to discuss how her family’s lives have changed since Bruce was diagnosed with FTD.

A Fireside Chat with Susan Dickinson and Emma Heming Willis

Watch the Fireside Chat

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Tuesday, July 30, 2024 | 3-4 p.m. ET

Working with Lawmakers to Highlight FTD

AFTD advocacy webinar

Advocate for Awareness:

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

AFTD Ambassador Spencer Cline and his future brother-in-law Paul are biking across America from Astoria, Oregon to Charleston, South Carolina to help support AFTD's mission and spread Help and Hope.

Spencer & Paul's Bike Across America for AFTD

Donate to Spencer & Paul's Fundraiser

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Managing a Diagnosis: Brian’s FTD Story

In 2020, when Brian Dowden was in his late 30s, he noticed changes in his cognitive abilities while preparing to take the licensing exams required by his profession. “It was…

British/Dutch Study Discovers Role of ANG Gene Mutations in ALS-FTD

Researchers at the University of Bath in the United Kingdom and the University Medical Center Utrecht in the Netherlands have uncovered an association between an inherited genetic variant of the…

AFTD and ALLFTD Collaborate on Brain Donation Video

AFTD and ALLFTD have partnered to create a brief animated video that explains the brain donation process, as well as how it helps FTD researchers and families affected by FTD.…

Dear HelpLine: Support for Familial and Genetic FTD

Dear HelpLine, My mom was recently diagnosed with FTD; my late uncle and grandmother had dementia, and I’m concerned that this may be genetic. Is there support for people facing…

Vesper Bio Completes Ascending Dose Phase

Vesper Bio Completes Single Ascending Dose Stage of Its Clinical Trial for Potential Disease Modifying Treatment for FTD-GRN

Biotechnology company Vesper Bio announces it has completed the single ascending dose stage in its clinical trial of its potentially disease-modifying treatment for FTD-GRN. The recently completed trial evaluated the…

Cookie	Duration	Description
cookielawinfo-checkbox-analytics	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics".
cookielawinfo-checkbox-functional	11 months	The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional".
cookielawinfo-checkbox-necessary	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary".
cookielawinfo-checkbox-others	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other.
cookielawinfo-checkbox-performance	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance".
viewed_cookie_policy	11 months	The cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data.

News & Events

Managing a Diagnosis: Brian’s FTD Story

British/Dutch Study Discovers Role of ANG Gene Mutations in ALS-FTD

AFTD and ALLFTD Collaborate on Brain Donation Video

Dear HelpLine: Support for Familial and Genetic FTD

Vesper Bio Completes Single Ascending Dose Stage of Its Clinical Trial for Potential Disease Modifying Treatment for FTD-GRN

Delaware Passes Resolution Recognizing FTD Awareness Week 2024

Advocacy Update: Join AFTD in Advocating for FTD Awareness Week in All 50 States

Study Explores Racial Differences in Clinical Presentation of FTD Symptoms, Disease Severity

Have Questions?