The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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Action

Tuesday, November 19, 2024 | 1-2 p.m. ET

Navigating the Holidays with an FTD Diagnosis

Care Partner webinar

Care Partner Learning Series:

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

A Conversation with Alector’s Vice President of Clinical Development

Earlier this year, the biopharmaceutical company Alector announced that the U.S. Food and Drug Administration (FDA) had granted a “breakthrough therapy designation” to latozinemab, the company’s investigational drug designed to…

Vesper Bio Announces Successful Completion of Phase 1 Study for Potentially Disease-Modifying Treatment for FTD-GRN

Biotechnology company Vesper Bio announced in early September that the phase 1 clinical trial for its potentially disease-modifying treatment for FTD-GRN has successfully concluded. The company noted data from the…

AFTD Webinar: Diagnosing Primary Progressive Aphasia

With primary progressive aphasia (PPA), problems with language and communication typically deteriorate gradually over time. Initial symptoms are sometimes attributed to anxiety or stress until the ongoing symptoms become disruptive…

Reauthorize Funding for the Older Americans Act Decorative element

Tell Your Legislators: Reauthorize Funding for the Older Americans Act

You may think that because frontotemporal degeneration strikes many people in the middle of their life, that the Older Americans Act may not apply to you. But the OAA provides…

Text: AFTD Hosts 2024 Research Rountable Meeting Background: AFTD Staff and Board Members at the FTD Research Roundtable meeting.

Advancing Hope: AFTD hosts 2024 FTD Research Roundtable Meeting

The FTD Research Roundtable is an annual program designed to accelerate FTD drug development by convening various scientific stakeholders to identify common challenges and advance solutions for FTD clinical trials.…

AC Immune and Life Molecular Imaging Announce FDA Fast Track Designation for Tau PET Tracer

Swiss biopharmaceutical company AC Immune announced in late August that its partner, German biopharmaceutical company Life Molecular Imaging (LMI), received a Fast Track Designation from the US Food and Drug…

Emma Heming Willis Town & Country interview decorative

Emma Heming Willis Shares Her FTD Experience and Advocacy Work in “Town & Country” Magazine

Emma Heming Willis spoke with journalist Katie Couric about her journey as an FTD care partner, as well as her advocacy for FTD legislation and research following the diagnosis of…

Advancing Hope: AFTD Attends Tau Consortium Investigators Meeting

Members of the AFTD staff, along with several funding partner organizations, gathered with the world’s top scientists studying tauopathies for the 2024 Tau Consortium Investigators Meeting (TCIM) this September in…

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