News & Events

Delaware Passes Resolution Recognizing FTD Awareness Week 2024

Delaware became the third state to officially recognize FTD Awareness Week 2024 (September 22-29) after its Senate unanimously passed the resolution SR23 on June 27. State Senator Kyra Hoffner sponsored…

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Advocacy Update: Join AFTD in Advocating for FTD Awareness Week in All 50 States

This past May, AFTD staff and other FTD advocates traveled to New York and California to celebrate the successful passing of their respective resolutions that commemorate September 22-29 as FTD…

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Study Explores Racial Differences in Clinical Presentation of FTD Symptoms, Disease Severity

A study published in JAMA Neurology explores whether FTD symptoms present differently based on the race of the person diagnosed. Previous studies have sought to compare neuropsychiatric symptoms in Black/African…

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AFTD Webinar: FTD and ALS — A Collaborative Approach to Diagnosis and Care

We know of several genes that can cause hereditary FTD, ALS, and ALS with FTD, with C9orf72 the most common. Yet genetics is not the complete story, as these conditions…

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Advancing Hope: AFTD-ADDF Partnership Announces New Award in Drug Discovery Program

AFTD has partnered with the Alzheimer’s Drug Discovery Foundation (ADDF) since 2007 to support preclinical research on promising new drugs through the Accelerating Drug Discovery for FTD program. We are…

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Viewpoints of FTD – Brain Donation

While there is currently no cure or approved treatments for FTD, increasing numbers of diagnostic tools and experimental treatments are entering the clinical trial phase of their development. A major…

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AFTD Volunteer Receives “Visionary of the Year 2024” Award for 40 Years of Advocacy

AFTD volunteer Wanda Smith received Alzheimer’s San Diego’s Visionary of the Year 2024 award for her FTD advocacy and awareness-raising efforts, which date back to the 1980s. Smith’s journey began…

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AFTD Volunteer Speaks about Trading Career for New “Vocation” as Caregiver

Alma Valencia, an AFTD volunteer in California, shared the challenges, stresses, and “moments of joy” she experiences as her mother’s caregiver in an as-told-to essay published recently in Business Insider.…

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