The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

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Diagnostic Information

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May 1-2, 2025

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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who understand.

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News & Events

Linde Jacobs Shares Her Family’s FTD Journey with the New York Times

Linde Jacobs Shares Her Families FTD Journey with the New York Times

A recent article in The New York Times highlights the inspiring story of Linde Jacobs, a nurse and advocate carrying a genetic frontotemporal degeneration (FTD) variant. Her journey exemplifies the…

Empower a Future Free of FTD with a Year-End Gift

For over 20 years, AFTD’s volunteers, supporters, and partners raised awareness, supported one another, educated healthcare professionals, advanced research, and advocated for a better tomorrow. When you support AFTD’s mission,…

AFTD Research Team: A Year in Review

2024 has been a hopeful year for FTD Research, and it’s also been an exciting year for the AFTD research team. It isn’t easy to summarize all that’s been accomplished…

Article Lists Ways Researchers Can Involve People with Dementia in Identifying Research Priorities

A research article published in the Journal of the American Geriatrics Society discusses how researchers can better involve people living with FTD and other types of dementia in discussions to…

Perspectives in FTD Research Webinar: FTD Research 2024 – Where We’ve Come From and Where We’re Headed

The science of FTD is evolving at a rapid pace and it can be difficult to interpret the scientific advancements and how they may impact families facing an FTD diagnosis.…

AFTD Ambassador Advocates on Behalf of the Older Americans Act

AFTD Ambassador Judy Bearer advocated for the reauthorization of the Older Americans Act (OAA) in a December 8 opinion article published on the website Cleveland.com. Ms. Bearer, who has been…

Advancing Hope: AFTD Attends 2024 Society for Neuroscience Meeting

Dr. Nicole Bjorklund, AFTD Director of Research and Grants, and Dr. Kate Still, Research Outreach Manager, attended the Society for Neuroscience meeting in October to take in the latest research…

New York Software Company Awards AFTD Gift to Honor Employee’s Late Cousin

AFTD has been selected as one of three organizations to receive a gift from Mindex, a software-development company in Rochester, N.Y., in honor of the latter’s 30th anniversary charity initiative.…

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