News & Events

Dear HelpLine: Looking for Support Options

Dear HelpLine, My brother was diagnosed with FTD. I see that AFTD offers support groups, but I’m not sure who they are for, or which one is right for me.…

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Study Examines Nature of Criminal Risk Behaviors in Dementia

An Australian Study uses an experimental screening tool to examine the propensity and nature of criminal risk behaviors in dementias like FTD. While further research is needed to better understand…

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Statement from The Association for Frontotemporal Degeneration (AFTD) on Disruption of Scientific Research Funding and Activities

The Association for Frontotemporal Degeneration (AFTD) is deeply concerned about recent policy changes and layoffs at the National Institutes of Health (NIH) that greatly disrupt biomedical research of high importance…

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Guest Feature: The Story Behind the Story – Our Journey Through FTD and Why I Wrote “Welcome to the Honey B & B”

Novelist Melody Carlson drew from her family’s FTD story to write her latest book, Welcome to the Honey B & B, which will be released on March 4 by Baker…

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AFTD Webinar: At the Intersection of FTD and the Law

FTD can present with executive dysfunction, impulsivity, loss of empathy, apathy, and disinhibition. At times, these symptoms can lead to interactions with police, whether responding to an incident at home…

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Passage Bio Announces Interim Data for UpliFT-D Trial for FTD-GRN

Biotechnology company Passage Bio released interim data for its upliFT-D clinical trial for its gene replacement therapy for FTD-GRN and announced that it is on track to expand the trial…

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Advocacy Update: Protect FTD Research Today!

Calling all AFTD advocates – federal funding for FTD research is at risk, and we need your advocacy to protect it. Earlier this month, the National Institutes of Health announced…

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FTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research

An article published in the journal Alzheimer’s & Dementia identifies gaps in current FTD research caused by disparities in access to proper dementia care and research centers, and outlines ways…

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